Until very recently it was primarily neurologists who were prescribing acthar. Most rheumys should know about
it now but I would guess that many have no experience with it. The acthar rep talked to the myositis support group I run and Questcor has also been generous to the Myositis Association. Not sure if they are interacting with LFA or not.
If someone has financial problems using acthar Questcor has a large amount of money set aside to subsidize a needy patient. Don't know what their requirements are.
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.
Remain Optimistic and you can overcome.