Hi Lynnwood and Laura. Here's what I learned from my rheumy and some Acthar research I did. ACTH is the hormone produced in the pituitary gland that induces the secretion of various types of steroids. ACTH(ar) is collected at pig slaughter houses from pig pituitary glands. It's been used since the 1950s for infantile spasms anhtd much later was found to help other disorders such as MS and polymyositis. Questcor bought the rights to the drug for $100,000 in 2001. Manufacturing of Acthar is complex, but doesn't cost anything near the $28,000 a vial that they charge.
I will inject it into my muscle for 5 days straight and then twice a week. It's supposed to make my pituitary produce cortisone. It shouldn't be given to patients with osteoporosis, but apparently osteopenia is okay.
I'm still pretty leery. I'll keep you posted. Love, Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry