Lupus and the kidneys

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tinabones
Regular Member


Date Joined Oct 2011
Total Posts : 61
   Posted 9/20/2013 7:09 AM (GMT -6)   
Has anyone experienced amonia breath from Lupus related kidney issues and what is the treatment

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 9/20/2013 1:05 PM (GMT -6)   
Yes. Used to happen all the time, still have it if I get a bad treatment. How is your creatinine? Are you seeing a nephrologist? Mine didn't go away until I started dialysis! What you are smelling is basically your bodies toxins. Gross I know but what it is. You can also start smelling like that so keep your hygiene up!! Good luck!
Amy
Lupus Moderater


dialysis from lupus nephritis

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/20/2013 1:37 PM (GMT -6)   
Does it smell like dill pickles? Once and awhile I smell dill pickles and don't have any near me.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 9/20/2013 1:44 PM (GMT -6)   
No, it smells like amonia....not pleasant!
Amy
Lupus Moderater


dialysis from lupus nephritis

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7698
   Posted 9/20/2013 1:50 PM (GMT -6)   
ammonia - y'all need another "m"! smilewinkgrin

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 9/20/2013 1:55 PM (GMT -6)   
Haha. Oops, guess you can tell spelling was never my strong subject!
Amy
Lupus Moderater


dialysis from lupus nephritis

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/20/2013 2:44 PM (GMT -6)   
I knew what you were typing I used to decipher first grade writing. ;-))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

tinabones
Regular Member


Date Joined Oct 2011
Total Posts : 61
   Posted 9/20/2013 5:50 PM (GMT -6)   
Amy how long did u have Lupus before they made the diagnosis official and how sick did u get before they decided yes it's Lupus

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 9/25/2013 3:49 AM (GMT -6)   
I started having joint paints on Sep 16, 2007, had to wait for insurance to kick in at my job, went straight to rheumy (RA runs in family) and he drew blood work, went back a month later and was diagnosed with lupus. I was classic book work lupus except butterfly rash. Every blood test they ran checking for lupus came back positive showing it was lupus. They actually started me on plaquenil and daypro my very first apt. Then a year later I had to switch doctors cause mine wasn't listening to me and my kidneys failed for the first time shortly after that.  
Amy
Lupus Moderater


dialysis from lupus nephritis

tinabones
Regular Member


Date Joined Oct 2011
Total Posts : 61
   Posted 10/7/2013 5:33 PM (GMT -6)   
i feel like a ticking time bomb. i started having joint pain in 2008 along with extreme fatigue. still no definitive answers. my blood work shows problems starting with my pancreas now and my left side hurts all the time. i just don't know what else to do

tinabones
Regular Member


Date Joined Oct 2011
Total Posts : 61
   Posted 10/7/2013 5:36 PM (GMT -6)   
does fibromyalgia cause organ damage

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/7/2013 9:36 PM (GMT -6)   
No, but lupus does.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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