Doctor Frustration

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New Member

Date Joined Sep 2013
Total Posts : 1
   Posted 9/22/2013 1:09 PM (GMT -6)   
I am a 44 year old woman who is wondering if all Rheumatologists are the same? I was recently referred as I had gone to my PCP with joint pain and stiffness in many joints upon waking and after periods of inactivity. After running blood tests everything was OK except I had a positive ANA and high total protein. I've had Raynauds for quite awhile, fatigue, migraines and "foggy brain". I have a very strong autoimmune family history with my Mom, brother and Grandmother all suffering from RA, as well as a paternal grandfather with RA.

When I saw the Rheumatologist, he told me that I wasnt 17 anymore and should pop some Tylenol. I felt very foolish when I left his office, yet at the same time I don't feel well. I know ANA tests don't necessarily mean anything, but he didn't even offer a follow-up. He said he would re-run the ANA to prove it was wrong and figured he'd never see me again. Argh!

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 9/22/2013 1:41 PM (GMT -6)   
No not all are the same. Getting diagnosed is a tricky business but you shouldn't be hinder by a rude doctor.
Find another one and have them check you out again.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Forum Moderator

Date Joined May 2005
Total Posts : 7668
   Posted 9/22/2013 6:39 PM (GMT -6)   
With a history of family RA, I'd check out the website If you can find a local chapter of the arthritis group, they should have an advisory board that includes local rheumies. I would look there for a Dr who has more interest in actually treating RA.

Or if you have other lupus symptoms (follow diagnosing lupus link below) and are leaning toward lupus, check out [url[ for local chapters & active, interested Drs.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 9/22/2013 11:36 PM (GMT -6)   
Rheumy's can be difficult at times, which is to bad. It takes so much out of us to travel to see them and then have them treat us like we're 5. I know with me I started having symptoms of lupus in my late teens like age 17. When I was 22 I had my first positive ANA test and loads of symptoms. It was mentioned by my internal med doc that I might have lupus.

Nothing was done about that and they doctors continued to go back and forth on whether I had it or not. Fast forward 13 years and finally I hear the words "YES, YOU HAVE LUPUS". Man of man did I wait a long time for those words, and they treatment was even more important to me. Heck they said I had RA before I had lupus officially.

I wouldn't get to upset over this rude jerk, so ahead and get another opinion. Sounds like it runs heavy in you family history. I'd get checked again, but try to remember sometimes you'll go through a few Doctors before you find the right one.

Wishing you the best and will look for updates from you. I hope they get it figured out real soon and you start feeling better ASAP.

DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

New Member

Date Joined Sep 2013
Total Posts : 3
   Posted 9/24/2013 12:19 PM (GMT -6)   
It took 10 years and a lot of patience to find a doc and a diagnosis. Officially, I have mixed connective disease. I had all of the right symptoms, but the wrong lab work. I cannot tell you how many times I have been patted and told, well we are all getting older and we do have aches and pains. Then I was usually offered some kind of anti depressant.
Keep up your search. Don't go in with a conclusion. Tell the doc your symptoms, but don't say "I think I have lupus". At the end if it doesn't go well ask about lupus. Hang in there and be persistent
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