Mouth Sores, Raw Tongue on 35mg Injectable MTX

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 9/23/2013 12:30 AM (GMT -6)   
Okay lupus family I need some help. My Rheumy has increased my MTX from 25mgs injectable once a week to 35mgs weekly. We noticed that I had a heightened liver value on my last lab exam, but according to the Dr it was in the range of it being a lab error. I'm still worried about this as I really don't need to start having serious liver or kidney issues.

I'm taking Folic Acid 2 mgs daily 7 days a week. My sores are very large, my tongue is raw and very red in color. I'm having a very difficult time eating any type of food. Most everything I'm eating, IF, I do eat my food has to be very bland. I can't handle any salt, or ketchup, no spice whatsoever and I'm sticking it seems to yogurt, ice cream, and pudding.

Has anyone ever had this problem this badly? What did you do to treat your mouth. I've been prescribed two different mouth washes and they don''t touch the pain. Any suggestions, I did try warm salt water but no go for me. I would appreciate any and all suggestions as to some type of cure for this small pain in the neck of a problem.

Hope you are all sleeping by now or getting ready to go to sleep. I'm headed to my bed now. Hope you have a good week and I hope that your pain levels, lupus fog, and fatigue are low.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/23/2013 12:49 AM (GMT -6)   
Someone told me that gargling with a thimble full of rum helps. I'm a teetotaler so I don't keep it in my house. :p

I like to use warm salt water and orajel mouth gel.

Get some botine mouthwash to rinse your mouth and see if you can increase your vitamins E, B7, B6, & B12.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted Yesterday 8:01 PM (GMT -6)   
I used the search from the blue bar at the top of this page. It looks like most of the people who post anything about MTX are in the Rheumatoid Arthritis forum ... Maybe asking over there would get better results?

I just can't recall any of us taking MTX very long or in very high doses like you're on. Sorry I don't know more!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted Today 1:03 AM (GMT -6)   
Barb,

I will recommend the same thing my oncologist at the time suggested for me after I completed the brutal neck/throat radiation I underwent back in 2000. He suggested that I eat green seedless grapes. Sounded silly to me at the time, but I did, and I relieved a lot of the burning feeling in my throats and mouth. I ate them all the time for several months. It was soothing. He said there is some agent or natural chemical in green grapes that gives the effect. He said it was not the same in red grapes, only green grapes. All I can say, is that it helped at the time.

David
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted Today 3:29 AM (GMT -6)   
Hi Barbara. I like Purgatory's grape suggestion. I get thrush and red, burning, cracked tongue frequently. Prescription Magic Mouthwash has lidocaine and stop the pain, but what I use most is the med that kills the thrush- Nystatin Swish & spit. I also find it soothing.
 
While on my pic line with no food for a year, a dietician suggested I try Puffed Cheetos. I don't know their sodium content. They gave me some satisfaction of "eating" and I loved the taste. I also drank juices and sucked on hard candy. Now that Sjogren's is giving me such trouble I try (key word try) to only eat candy sweetened with Xylitol which makes ya salivate.
 
I've just started a prednisone taper so sleep is elusive. I hope you're having sweet dreams Dear. Love Ya, Donna 
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator
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