my sle has been in remission for awhile now but I still am not well, I have more sick, tired, achey days than up and around feeling good days. I am wondering if my sle has stopped and something else has come here! (Sounds like a mystery novel but it is unfortunately real life), I feel so, so bad some days, if I didn't have my family -kids grown up and just hubby & me now- I would jump off a bridge and I not only feel physically sick, I feel so depressed also-but only when the wiped out feeling is here, if I am having a rare good day I feel really good mentally as well-weird... my daughter said it m/b Lyme D. but my Rheumatic doc checked w/ 2 Lyme tests and was negative but my s/s are very similar to the LD list.
Any ideas? thx. Sueg
Non-paral. Polio as child, SLE for 15+ yrs.-now in remiss., fibro, UTI's, migraines w/vision prob., IBS, dry mucous membr., memory prob., depression (duh!), PVC's, totally exhausted at times, (do the Doctors really know what the heck we are talking about when we give them a list of real symptoms---there should be a law against feeling so crappy and having a Doctor say 'ummmmmm'