Welcome AllisonC70, Lupus Panniculitis?

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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/26/2013 7:41 AM (GMT -6)   
Hi I have been searching for answers on how to treat my recently diagnosed Lupus Panniculitis, about a year ago I had three small lumps appear on both arms (upper) and right on my right shoulder blade at first they were little balls I had an ultrasound and was told that they were a type of lypoma, and that they were fine but over the next eight or so months they began to flatten and two of them have a bruise like appearance and one is not so dark but thicker any way I went back to the doctors and was sent to a specialist who did a biopsy which confirmed that I have a rare form of Lupus so I have read a lot of your posts and I don't seem to have the same problems I have don't any pain or itchiness I only have the same three and its been well over a year since they first appeared, I also have never had any SLE symptom's and have always been very well, the doctor has never seen a case like mine since medical school and cant give me any info except to say that it was triggered and I could go on the same medication to which those suffering SLE lupus are on but since im not sick or in pain im looking towards a natural remedy I have a friend who has SLE and she was on the malaria drug and weened herself off it by taking colloidal minerals watching her diet and drinking stinging nettle tea so has anyone got anything else I can try? (im in Australia)

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Welcome Allison - I have given your post it's own thread and welcome to HW.

jennisparkle
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/20/2013 2:42 PM (GMT -6)   
Hi lynnwood, I also suffer from panniculitis. Mine has damaged both cheeks on my face and both of my breasts. My symptoms seem to be worsening afyer having hese lumps for over 8 years now. I take hydroxychloroquine and methotrexate which both helped at first but don't seem to anymore.im going to ask my consultant about prednisone as ive never tried that before. My lumps are becoming more painful now although nowhere near intolerable but noticeable all day long and not just that but my face is very scarred. My drs are like yours and dont know how to treat it! I also dont suffer with SLE symptoms which I count myself very lucky for. Have you found any other treatments since you wrote this post?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 10/20/2013 2:54 PM (GMT -6)   
The original post was from member AllisonC70, who I don't think has been back to the forum. I don't have Lupus Panniculitis and don't really know anything about it.

Anyone else??
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

jennisparkle
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/20/2013 2:55 PM (GMT -6)   
Ok thanks for letting me know :)
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