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Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 9/28/2013 2:29 PM (GMT -6)   
I was lucky and caught her in a comfortable moment.  We chatted about the surgery and her health in general and she seemed in such good spirits.  I even commented on that.  Her voice was clear and upbeat.  I love Barbara very much  and am glad all went pretty well.  No vent!!  Praise God.
Please keep her in your prayers as she recovers.  Her hubby is keeping a close eye on her today and will be watching her this weekend.
She kept telling me how good this forum has been to her and how much you all mean to her.  I'm so happy to hear it.
God bless you all.
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 9/28/2013 2:48 PM (GMT -6)   
Hey Linda:

LOL, great minds think alike. Yes, we just spoke awhile go. It's always so nice to talk to my friends from HW. Linda and I have been talking for years now on the phone. She's a great support to me and I don't call you often enough Linda.

I was saddened to hear that your not doing the best and that the Lyrica isn't healing as much as you hoped. It's great to see you back posting on the forums. I hope that you'll stay around for a bit. You're always in my prayers and you I'm here for you anytime you need me.

Give those wonderful granddaughters a huge kiss and hugs from Auntie Barbara. Tell hubby I said hello and I hope that you both have a good weekend. I'll call you later in the week. Take care of yourself and God Bless.

DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 9/28/2013 9:50 PM (GMT -6)   
Hey Barb! And thanks, Linda!

Just dropped into "Lupus" to see if there was new word on my friend Barb, and there it is, both of you at the same time.

Barb, Sounds like you are back on the mend again, which is a great thing for me to read this evening.

Hope you continue to get over this last surgery, and hoping more that it does some good for you.

Don't overdo yourself, give yourself plenty of time to re-coop from all you have been through.

Been thinking about you today.

Thanks, Linda, for starting this thread.

Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012

Veteran Member

Date Joined May 2013
Total Posts : 1352
   Posted 9/29/2013 10:34 PM (GMT -6)   
Was on cp forum & thought "Oh need to check lupus & see how Barbara id doing"
( the fibro fog has been pretty thick for most of the last few weeks !)

Great to hear how you are doing .. and you know that You stay on my prayer list

Hope it is a low pain Good nite..

Herniated cervical discs & other disc / spine issues, Arthritis,
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis
Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 9/30/2013 12:17 AM (GMT -6)   
Hi David and Diane:

David thanks for stopping by and checking up on me. I'm hanging in there, I've had a tough day today, I over did it I think. We were trying to get things ready for a new bed that will be delivered soon we hope. We purchased a memory foam bed almost 1 year ago this November. At first it was just the right amount of firmness, and the company gives you 120 days to try it out. If you don't like it you can exchange it for something different from their choices.

about 3 weeks ago Bill mentioned that he was VERY disappointed that we purchased this bed and he'd never buy another one. We did go to the mall and checked out a Sleep Number Bed, very comfortable, but big bucks, considering we'd just spent almost $2,400.00 last November on this bed. We decided to just tough it out for now. I looked up the company that makes the bed we bought and it directed me to contact who I bought it from. I did and the Salesperson said she'd totally replace the bed with a different type sold by the same company. I'm now expecting a different bed to be delivered this week, so loads of cleaning and vacuuming this weekend.

I'm totally wiped out and am hurting a lot tonight. I'm sorry that you were hurting so bad today too. It seems that you and I can't catch a break when it comes to managing our pain levels. I'm praying that you'll be able to enjoy your cruise and have very little pain and can manage just fine on the ship. I think of you daily all thru out the day. Hang in there David your pain buddy is here if you need her.

Diane sorry to hear about the Fibro Fog, boy do I understand that one, I get the lupus fog and the fibro fog often. I hope it clears up soon for you. I hope that you're pain levels have been coming down. Try to rest so that your fog goes away and you begin to feel better. As always you're in my prayers daily.

DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
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