symptoms and no answers

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vic38
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/29/2013 1:22 PM (GMT -6)   
Hey guys.
was all over the internet trying to figure this out, and I am hoping you all could help me.
I had an ANA test done and all came back negative, but RNP was 3.0.
I have spells of trouble breathing, high heart rate to the point I feel like im going to pass out..My lungs hurt like I am filling them and they are stretching...but at all times.
I feel horriable all the time but it flares up and gets much worse...sometimes I have to go outside in the cold to get my wind and some times it helps.
My dr says he don't know what RNP is or what it means, Ive looked it up and it is associated with lupas and mctd..the only thing is...I have no rashes.
Im worried and was just wanting to know if you believe these symptom are characteristic of either of these desieses.
Thank you.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/29/2013 2:17 PM (GMT -6)   
Have you read lupus.org website? It has the list of how lupus is diagnosed.

Also you need to have your doctor refer you to a rhuematologist to have further testing done. Have you been checked for asthma or pleursy?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

vic38
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/29/2013 4:12 PM (GMT -6)   
No I have not actually. will I get a 3.0 rnp with these problems?
Thank you for the reply, I will be talking to my dr tomorrow and mention it.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/29/2013 4:55 PM (GMT -6)   
My niece had a high Rnp during bloodwork but has not developed any symptoms as of yet.
Usually its related to mctd more than lupus. I'm hoping someone who know more on mtcd will post today to talk to you.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 9/29/2013 9:03 PM (GMT -6)   
RNP is an antibody that is most associated with mixed connective tissue disease which is an overlapping connective tissue disease.  The classic definition is that you can have symptoms of lupus, scleroderma, and polymyositis but each case is different in presentation and progress.  It could also include symptoms of other autoimmune diseases. 
 
I have mctd and had symptoms of lupus and polymyositis but have been in remission for almost 8 years.  You need to find a rheumatologist or neurologist who is experienced treating autoimmune diseases.  It is almost always treatable but everyone reacts to meds differently so having an experienced doc is very important.
 
FYI, people get confused about lupus and overlap diseases.  Lupus is a connective tissue disease and mctd is a syndrome that can include lupus symptoms as well as symptoms from other diseases.  In effect, you have lupus and possibly other diseases all wrapped into one.  Treatment is pretty much the same and governed by your symptoms and their severity.
 
Good luck,
 
Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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