Hey pain buddy, how are you doing tonight? Thank you so much for stopping by and checking up on me. It's good to know that you care, today has been a difficult one for me. So seeing your post brought a smile to my face
I sure am jealous of you and your wife, I hope you have a fantastic time. I'll miss not hearing how you are doing, but I think that being totally alone (less an emergency) with your wife is a very good thing.
I will be saying many prayers and sending loads of healing energy your way. I really hope that you have NO severe pain days, are able to walk around the ship with ease, and your fatigue is mild if not gone all together.
I will be looking for an update as soon as you are up to it. If you're not doing well, and can't post just drop me an email, and I'd be happy to let the PC folks know you're home but not doing to well. OF COURSE, that won't be the case, you are going to do great. Enjoy and have fun!!!
As for me, today was a terrible pain day. My back pain was OFF THE CHARTS. I tried to book my PT Appts but it's messed up by the hospital and I need my Dr to resubmit the request
I need help right away I can barely walk the pain is so bad.
I saw my massage therapist yesterday, she said I was so tight that my muscles felt like cement. Said I was the tightest she's ever seen me. I noticed that when she'd hit a bad spot it would take my breath away the pain was so bad. My back is tender to the touch today
This really is no way to live I say. Something is going to have to give, I swear, or I might just lose my mind.
The one good thing from the massage was, my baby toe and the next one over have been numb since my tendon ruptured in August. Her working on my low back seemed to have released something as those toes don't feel as numb as they did.
As for my surgery, I'm doing okay I guess. I'm flaring quite a bit, but that was expected with my lupus. My incision is
open and looks bad, but it's not infected. Saw my Dr yesterday, he said its going to take awhile for it to heal. No immune system = poor healing. He felt bad that it came apart. Will f/u in two weeks.
That's all for now, I'm wiped and need sleep. David thank you for being there for me. Please know I'm here for you anytime you need me. Have a great trip.
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.