long wait for rheumatologist...advice needed

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Rmort
New Member


Date Joined Oct 2013
Total Posts : 1
   Posted 10/15/2013 5:44 PM (GMT -6)   
Hello. We have recently had blood work done on my husband because our family doc suspected Lupus. Based on the results, our family doc has referred him to a rheum. but we can't get in til April! She doesn't feel qualified to help us much with diagnosing.

Here is what we know:
ANA positive - 1/160
Pattern - Homogens Pattern 1
Anti dsdna - 84

MON ABS - 1.05 (H)

ESR - 2.0
CRP - .3

Hyaline Casts - 2.0 uL (H)
UR Blood - Trace

IGA - <2
TTG IGA - 1
___Gliadin IGA - 3
Gliadin IGA - 1

We aren't sure how to proceed or even if we can before seeing the rheum. Are there natural/diet things that can help? It really looks to me like we are heading for a lupus diagnosis...am I over-reading it? He has joint pain and the sores/ulcers in his nose. Are there any books or sites you'd recommend? I'm also wondering about celiac with the low IGA. Any advice from experience would be great?

Thanks,
Rebecca

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/15/2013 6:33 PM (GMT -6)   
I'm not able to tell just by labs. You'll have to wait on the doctor for a diagnosis, but I can tell you some great resources.
Websites:
Lupus.org
Lupus.com

They both have the 11indicators of lupus. He only needs 4 out of the 11 to have lupus.
Has he noticed if the sun affects him in any way?
A small percenage of people with lupus are not photosensitive.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 10/15/2013 8:00 PM (GMT -6)   
Not till April?!!!! Check on www.lupus.org for the chapter closest to you. Then talk to the chapter and find out which rheumotologists work with them. Keep calling down the list until you can get an earlier appointment!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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