Echo results - Anyone else have diastolic dysfunction?

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LupieLain
New Member


Date Joined Oct 2013
Total Posts : 12
   Posted 10/21/2013 9:42 PM (GMT -6)   
Hi,
 
I got the results of my echo today.  I am still have continuing chest pain.  Well it said I have the first stage of diastolic dysfunction with inflammation and irritation.  My rheum said it is caused by high blood pressure, except that I have NEVER had high blood pressure.  I am normally 90/60 with the highest measured of 110/72.  I have been as low as 80/48 and still not faint or anything.  My look up on the net has linked lupus to diastolic dysfunction.  I am seeing the cardio next Wed.  Any thoughts?
 
Thanks!
Lainie

SouthernChick
Regular Member


Date Joined Aug 2013
Total Posts : 79
   Posted 10/22/2013 5:21 PM (GMT -6)   
My blood pressure sounds exactly like yours. I woke up ill on July 30th after being a reasonably healthy and active person, and one of my many symptoms is heart palpitations and tachycardia. The only thing I've been dx'd with so far is allergies and my ANA titer has been high 2 times in a row - last was 1:160 H. Upon giving me that news, my allergist said that I have an auto-immune disease. I have not yet seen a rheumy and really don't know which direction to go next. But I do know that my heart is about to jump right out of my chest right now.
2006, Summer: Unk. insect bite raised a large welt w/ ulceration. Short round of abx.
2012, June: Removed 7 ticks one day (only one attached). Found another attached 2 days later. Large rash. 20 days of abx.
2013, May: Two attached ticks about 2 inches apart. Both caused rash. Scratched one off and removed other appropriately. No abx. Rash for about 6 weeks.

LupieLain
New Member


Date Joined Oct 2013
Total Posts : 12
   Posted 10/22/2013 9:41 PM (GMT -6)   
SouthernChick said...
My blood pressure sounds exactly like yours. I woke up ill on July 30th after being a reasonably healthy and active person, and one of my many symptoms is heart palpitations and tachycardia. The only thing I've been dx'd with so far is allergies and my ANA titer has been high 2 times in a row - last was 1:160 H. Upon giving me that news, my allergist said that I have an auto-immune disease. I have not yet seen a rheumy and really don't know which direction to go next. But I do know that my heart is about to jump right out of my chest right now.


Hi Southern Chick,
I am sure you have been tested fro lyme with all the tick bites, but have you had your thyroid tested? Your titers are pretty low being only one titer above normal and your other symptoms with the tachy could be thyroid. It would be worth it to check!

Lainie

Post Edited By Moderator (Lynnwood) : 10/23/2013 9:44:48 AM (GMT-6)


SouthernChick
Regular Member


Date Joined Aug 2013
Total Posts : 79
   Posted 10/23/2013 3:32 AM (GMT -6)   
Thanks, Lainie. Thyroid has checked out normal twice. Lyme is so hard to diagnose with unreliable tests - one was negative and one positive, so jury still out on that one. There are so many cross-over symptoms with Lupus and Lyme. So, I've been operating on the premise of Lupus since one doc pretty much told me that's what I have. Will keep searching for answers! Thank goodness for HealingWell forums.
2006, Summer: Unk. insect bite raised a large welt w/ ulceration. Short round of abx.
2012, June: Removed 7 ticks one day (only one attached). Found another attached 2 days later. Large rash. 20 days of abx.
2013, May: Two attached ticks about 2 inches apart. Both caused rash. Scratched one off and removed other appropriately. No abx. Rash for about 6 weeks.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/24/2013 10:38 AM (GMT -6)   
Hi LupieLain. I have diastolic heart failure and a normal blood pressure. I was short of breath for a couple of months, but no chest pain. Many tests later (from pulmonologist and cardiologist working together) my Tled to the diagnosis. So my body is attacking my heart causing the wall of my left ventricle to thicken. The thickening of the wall makes the ventricle unable to contract properly and the resulting fluid build-up puts pressure on my lungs which makes short of breath. I now take Lasix daily. Lasix makes me pee (of course) and that relieves the fluid that presses on my lungs. Some days I have to take 2 Lasix.
 
Eventually if the Lasix is working I will have to switch to a stronger drug. I've searched this and noticed some, if not all, of these drugs are also used to treat high blood pressure. I'm just guessing, but that's probably why your doc said you have high blood pressure.
 
I really had a hard time accepting that my lupus has now invaded my heart and the stress caused me to flare. Now I've accepted it, but it still sucks and I'm very sorry to hear about your diagnosis. As long as I take my Lasix I'm okay. I'll see my cardiologist again in six months. I hope your cardiology visit goes well. Love, Butterflake  
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 10/24/2013 10:58 AM (GMT -6)   
Hi, I also have diastolic dysfunction and I do have hypertensive heart disease. My left ventricle has concentric hypertrophy...meaning it has thickened and become somewhat stiff. My problems began after all the autoimmune stuff hit. I am taking a calcium channel blocker, diltiazem and a beta blocker, bystolic. I additionally was diagnosed with pulmonary hypertension 2 years ago and that is being controlled.

It is good that you are being checked out...these problems can be helped.

Hugs, Robin :)
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

SouthernChick
Regular Member


Date Joined Aug 2013
Total Posts : 79
   Posted 10/25/2013 11:57 AM (GMT -6)   
Butterflake - I have had severe heart symptoms this week. No pain, but lots of palpitations and mild SOB. Back in July I went through a period of two weeks with heart flutterings and severe SOB. I almost went to ER on two occasions. My allergist said it was due to allergies. May I ask what your ANA titer is/has been? Mine has been only 1:160 which is right on the positive line. I'm still not convinced I have Lupus, but I am having lots of heart symptoms. Went to a pulmonologist who said he thought I "got into something" that caused my symptoms - I'm assuming he meant like an allergic reaction.
2006, Summer: Unk. insect bite raised a large welt w/ ulceration. Short round of abx.
2012, June: Removed 7 ticks one day (only one attached). Found another attached 2 days later. Large rash. 20 days of abx.
2013, May: Two attached ticks about 2 inches apart. Both caused rash. Scratched one off and removed other appropriately. No abx. Rash for about 6 weeks.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/26/2013 8:07 AM (GMT -6)   
Hi SouthernChick. Have you seen a rheumatologist? They are the docs who diagnose/treat lupus. There are 11 criteria used in diagnosing lupus and you must meet 4 of the criteria to say you have lupus. Lupus.org changed their format so this link is to WebMD http://lupus.webmd.com/guide/lupus-systemic-lupus-erythematosus-exams-and-tests and you'll see that ANA is only a small part.
 
The heart palpitations can be caused by many things. If you're having lots of anxiety (about your health) palpitations could be from a panic attack. Yeah, allergic reactions might cause palpitations, but you really need to be concerned about anaphylaxis which causes your tongue to swell and you can't breathe.
 
If you haven't had an ECG since the palpitations started, ask your primary care doc to run one. It's an easy test that detects many heart problems.
 
I'm curious about your tick rashes and why you get so many ticks. If the rash was shaped like a target (spot in center with ring around it) you could have Rocky Mountain Spotted Fever. Also there are ticks that only feed at night that cause tick relapsing fever. These ticks can live in bedroom walls that have cracks. 
 
Regardless, next time you have heart problems you really need to go to the ER. Love, Butterflake 
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 10/27/2013 8:52 PM (GMT -6)   
I had a lot of indigestion, nausea and vomiting recently.  I kept telling my Drs it was my stomach and acid reflux.   They made me go thru the stomach tests as well as see a cardiologist.  Gastro Dr says aid reflux out of control and put me on protonix, esophagus not working taking reglan before eating for that.  My stomach is much improved.
 
Stress  test was good , but echo shows enlarged left ventricle with aortic and mitral valve leakage.  The cardiologist says this is nothing to worry about unless I have shortness of breath, and I am good there.  They said the enlargemnt of left ventricle is usually do to high blood pressure which I don't have.  He said some people are just born that way.   I mentioned this to my Rheumy and she wants the records.
 
I haven;t slept in weeks over 2--4 hrs a night.   Finally got in to see Sleep Dr.  Old one has left (thank you Lord) and I saw new one.  Found out I actually have a bad case of apnea and the old Dr never told me.  So glad I have stuck with my CPAP.  i  am on a adjusting maching for a month and then I go back.  I have actuALLY slept  all night 3 nights this week.  For those of you who sleep.........this is a wonderful thing.  I now know when I have these problems its time to call the sleep Dr.
 
Hopr everyone has a wonderful week. 
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

SouthernChick
Regular Member


Date Joined Aug 2013
Total Posts : 79
   Posted 10/28/2013 5:45 AM (GMT -6)   
Thanks, Butterflake. I did have an ECG and checked out fine, altho I was not having palpitations at the time it was done. I am going to try to go in when I am having active palpitations. I don't feel like I am anxious, but who knows! about the ticks, I live in a wooded area with a very high deer population and in spring and early summer, ticks are everywhere. In 2012 I walked into a tick infested area, and earlier this year I got the two while doing yard work. I have been active on the Lyme forum as well - just trying to piece this all together and figure it out! I don't understand how a person can be perfectly fine and then wake up one morning ill and no one can figure it out. It is very frustrating to say the least. And to make matters worse, there are so many cross-over symptoms.
2006, Summer: Unk. insect bite raised a large welt w/ ulceration. Short round of abx.
2012, June: Removed 7 ticks one day (only one attached). Found another attached 2 days later. Large rash. 20 days of abx.
2013, May: Two attached ticks about 2 inches apart. Both caused rash. Scratched one off and removed other appropriately. No abx. Rash for about 6 weeks.

notthatold
New Member


Date Joined Nov 2013
Total Posts : 7
   Posted 11/7/2013 11:02 PM (GMT -6)   
Yes, there are many cross-over symptoms between Lupus, Lyme, Allergies, and many other diseases. I have also posted on the Lyme forum recently because our son was diagnosed with Lyme. I have had symptoms of Lupus - fatigue, achy joints, the butterfly rash, and ANA test at 1:1280. Only my dermatologist ever felt confident in diagnosing Lupus, but after learning more about Lyme, mold and other toxins, I wonder....
I would advise anyone with the cross-over symptoms to investigate Lyme further. Our son was diagnosed at Sponaugle Wellness in Florida, had 7 weeks of treatment, and is now a different person.

Our research is showing us Lyme is much more prevalent than we ever realized, and that it is an extremely dangerous disease that can be fatal. We have also learned that it is not only contracted through ticks, but mosquitos, horses, and even sexual contact!

Lyme is hard to diagnose through tests that regularly show false negatives. However, there are tests that are more accurate, and there ARE Drs. who are experts in the disease. I now believe we have thousands of people diagnosed with things like Parkinson's, RLS, IBS, psychological conditions such as depression and Bi-Polar disorder, who are never correctly diagnosed, never correctly treated, and therefore, their symptoms continue to worsen!

Western medicine has a problem with things like "chronic lyme" but when you see people's health improve, quickly and dramatically, you have a hard time not believing it.

So, for my two cents worth, and in my own opinion, I would suggest consulting with a Lyme expert. I have now seen too many people, including our son, who are not able to find a Dr. to help them. Maybe Lyme has nothing to do with your problems, but if it does, the Lyme expert is the only one who has knowledge to treat it successfully. ABX treatment alone will not be successful unless the Lyme is in it's first stage. Good luck to you all.

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 448
   Posted 11/8/2013 4:22 PM (GMT -6)   
This topic and conversation hits really close to home here lately, I'm so glad I've come back to this group! about a month and half ago I began having really bad chest pains, palpitations and more short of breath than usual. I blew it off at first, mentioned it to my Rheumy at my next infusion and he wanted me to go to my
cardiologist to rule out if it was lupus affecting my heart or possibly fluid around my heart. After a work over, nuclear heart scan, echo, EKG and labs they told me everything was normal (aren't they always? It's like taking the noisy car in to the mechanic and you can't get it to make a noise in front of them! Ugh). Anyway, I was relieve and thought okay it's probably just inflammation. I've to not think of it, but the chest pains are still happening and I'm having to use my rescue inhaler more and more.

After reading the posts here have me wondering "should I go with what I was told and simply chalk it up to inflammation or should I tell the docs no this is not normal what else can be done to test this?" Hmmm .... Always medical limbo : /

Hugs;

Melissa


Mother of 2 beautiful adult children and one amazing daughter in law, lupus SLE since 1997, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus SLE while in college. I take a slew of meds to many to mention, am on Benlysta infusions. I try to live each day with a positive outlook and count my blessings.
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