New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2011
Total Posts : 66
   Posted 10/22/2013 3:43 PM (GMT -6)   
Hi again,

I am experiencing body jerks. If I have a drink in my hand my body jerks and the drink I am holding, coffee, water, etc. goes all over me and my computer.

Do any of you experience this type of symptom. Last night I got up to go to the bathroom and when I came back to bed I was freezing cold. I put on a pair of socks and a shirt over my nightgown. I have never

Also when out of the house shopping my ankles start to swell.

Did any of you experience this type of symptom.


Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 10/22/2013 5:43 PM (GMT -6)   
I have body jerking but it's very slight compared to you. I was told by a neurologist it was benign essential tremors. I believe it is more than that though.

I get sudden body temperture changes too. Most of the time I'm too hot.

My ankles have been swelling for years when I'm on them too long. I take lasix to reduce the swelling.

Lupus sure does love to play around with our bodies. Sigh....
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Oct 2013
Total Posts : 35
   Posted 10/23/2013 11:16 AM (GMT -6)   
I have this but it is diagnosed as myoclonus. I never thought that it might be related to lupus. Two different neurologist confirmed it as myoclonus, but one said it was not a big deal because myoclonus happens to most people when they are tired. I think it is a big deal when I am going through my regular day and I start jerking! I've also noticed that it is worst when I have flare ups (increased antibodies). Based on this post, I'm starting to think it is not a coincidence.

Regular Member

Date Joined Jan 2011
Total Posts : 66
   Posted 10/30/2013 4:43 PM (GMT -6)   
I find these jerks occur more when I am tired. Lately I am tired all the time. It is most embarrasing when in a room of people and all of a sudden you have a big jerk. In the morning while having my coffee my hand will jerk so much that I spill my coffee all down my pajamas and boy is it hot when landing.
I am going to look into myoclonus and see how that figures in to my jerks.

Thank you for your replies.


Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 968
   Posted 11/4/2013 8:59 PM (GMT -6)   
I've been "suffering" with body spasms for years and was only diagnosed with lupus this year.
I like the paper ball syndrome where the spasm hits and my body curls into a ball and then when
it passes it straightens out. The worst I had is when it lasted for about 3 hours and the muscle
relaxers didn't touch it. Good luck with yours and hope you find help.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 12:49 PM (GMT -6)
There are a total of 3,005,463 posts in 329,227 threads.
View Active Threads

Who's Online
This forum has 161775 registered members. Please welcome our newest member, Rawle.
251 Guest(s), 5 Registered Member(s) are currently online.  Details
SoMuchFun, Mind body spirit, sadiecat, InTheShop, cppoly