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Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/26/2013 9:47 AM (GMT -6)   
I have had a really bad week. Prior to this week I began having a sharp pain in my right side below my rib cage. I was also sleeping what seemed like all the time. The pain became more frequent.
 
Sunday I went to the ER and was diagnosed with pneumonia again.  My other pneumonias presented with a cough I call the death rattle. Go figure. At least it was caught early and I wasn't admitted. I'm taking oral Levoquin (very strong antibiotic).
 
Monday I slept all day.
 
Tuesday afternoon Hubby and I took our 15 year old dog to the vet. He's been having lots of vet visits and we thought he might have to be euthanized this time. Yep. Vet said it's time. I rescued Mr. Peabody from a no kill in Las Vegas when he was 3 years old and he moved with me across the country. There I met my love and so did Mr. Peabody who immediately found his Sherman. Hubby and I miss Mr. Peabody so much.
 
Wednesday I stayed in bed.
 
Thursday I followed-up with my PC who got my ER results and my ECG shows Incomplete Right Bundle Branch Block. I already have the onset of diastolic heart failure. The branch block means that the bundle of nerves that send the electrical impulse that causes the heart to contract is partially blocked. Now I need to see my cardiologist. Also Thursday I went to my rheumy's office to ask for some of my records and got crap from a lazy woman who has lied to me in the past, but another staff member printed off the records. At home I found part of the records were missing. Oh, and I got lost while driving.
 
On a very good note, yesterday my Hubby took me to my new rheumatologist. Recently I saw my dermatologist (who was born with an autoimmune disorder & has a keen interest in lupus) and she referred me to her rheumy because she thought my lupus wasn't well controlled. The new rheumatologist is really great. I understood everything he said, but can't remember today (severe fog). Hubby remembers! He's a real blessing.
 
If you've read all this, you too are a blessing. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/26/2013 11:18 AM (GMT -6)   
Hey! I'm so glad that the new rheumy looks like a good option. I think when we have a Dr for too long, and we aren't making progress, that it's a wonderful idea to check in with another Dr!

I wish the heart news was better - perhaps your cardiologist will have some ideas on how to help you now that you have some new information.

Take it easy and get that pneumonia GONE. I know it isn't fun, but you really have to take it easy about twice as long as they recommend to really get the stuff knocked out.

Hugs,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/26/2013 4:17 PM (GMT -6)   
Sounds like a very rough week. I hope they can get you heart fixed up okay.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 10/26/2013 7:49 PM (GMT -6)   
 
 
Hi Donna,
 
       So happy to hear you found a good Rheumatologist.  That can be so helpful.  Sorry to hear about your heart condition.  It can be so scary.  Having experienced two episodes of atrial fibrillation that landed me in the hospital, I really sympathize with you.    I am sending you a great big gentle (((((((((((((((hug)))))))))))))).
 
Love, laura

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/27/2013 4:05 PM (GMT -6)   
Hi Everyone. Lynnwood I really need to take your consistently great recommendations and rest more. I miss Mr. Peabody so much that I'm not sure it would have prevented the nasty flare I'm having today, but it sure would help with the pneumonia.
 
Joy, thanks for your encouraging words. I really need them.
 
And Laura, the great big gentle hug means so much coming from someone who also has heart problems.  Love to All of You, Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/28/2013 8:35 PM (GMT -6)   
Donna:

(((hugs))) I'm so so sorry about your tough week. First, I'm sure your flare would have happened anyway, with having to put down your beloved Mr. Peabody. I know how difficult this is to do, I had to put or cat down in 2001. Now our big guy Grady is in rough shape and I'm dreading the day I'll have to put him down, I know it's coming soon.

I'm sorry about the pneumonia you need to make sure you get plenty of rest and lots of fluids. The heart information is a huge bummer, but hopefully your cardiologist will have a good solution for this new problem.

So very happy that you like your new Rheumy and praying that he gets you out of this flare that seems to be following you around all the time.

Take care and hang in there. I'll be praying for you and sending positive energy to you.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/29/2013 11:45 PM (GMT -6)   
Though I am not a regular here at HW Lupus, I come here to check on Barb, I did read your entire post/rant. You were certainly well justified in your words. Very sorry to hear of you having to put your beloved pet down.

We had to do that with our long term family dog about 3 years ago. Sandy was also a rescue dog, days away from being put down at the shelter. They had her marked down at the time for 10 bucks.

She was 4 when we got her, and according to the vet, was 21 when she had to be put down. All of my kids were raised with her, so I understand your sentiments. 21 was a very old age for a large breed dog, and if there is a dog heaven, Sandy is probably playing with your dog now, chasing cats, peeing on hydrants and having endless amounts of dog treats.

Hope you feel better, and have better days ahead.

David in SC
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/31/2013 8:03 AM (GMT -6)   
Aw, thank you so much Barbara and Purgatory. I know my weeks are nothing compared to yours Barbara, but I do get very tired of contracting pneumonia.
 
Looking back I think we should have had Mr. Peabody put down a little sooner, but he still had somewhat good days. Those days just were not enough to make up for the suffering he was in, especially when the vet said he was suffering. Purgatory, you made me laugh. I'm sure Mr. Peabody is having a great time.
 
I called my cardiologist who said he knew I had the incomplete bundle branch block and that millions of people have it, so don't worry. I need to focus on the diastolic heart failure (reduce salt and fluid intake and take Lasix).
 
I'm still sleeping most of the day and night, but when I'm awake the pneumonia symptoms are much better. Thanks for helping me feel better.
Love, Donna
 
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/31/2013 10:43 AM (GMT -6)   
Glad in our own small ways, that even a word we say may bring you, and the others here, some comfort. No one has an easy ride. You with your ailments, Barb with hers, and me fighting advanced prostate cancer compounded with severe chronic cancer pain and fatigue.

Think we all need to express and vent from time to time, I know it helps me when I do. Even those closest to me, often don't fully understand the sufferings I have.

My best to you,

David
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/31/2013 7:41 PM (GMT -6)   
Donna:

Sweetie I'm so sorry that your having issues with pneumonia again. I know that you suffer daily with your lupus and all the issues that come with it. I'm sorry that you're having issues with diastolic heart failure. It sounds like you have a lot of things that you have to do to treat this condition.

I'm relieved to hear that the bundle branch block isn't a serious issue for you. I'm glad that your Dr was able to reassure you that it isn't something that has to be taken care of immediately. I'll be praying that that you're able to reduce your salt intake, fluid intake and make sure you take your lasix daily.

I'm really sorry about your Mr Peabody, I'm sure it was very hard to hear that he was suffering. I'm kinda in the same spot as you were with Mr. Peabody. My cat Grady is declining and he has good days and bad ones and I just don't want him to suffer and yet I can't tell really when he is. Cats are so hard to tell when their pain is bad, except for when it's so bad, he's biting my hubby's ankles.

Donna, you did your very best for Mr. Peabody and you didn't make the wrong choice by keeping him around for a bit longer. I hope that your pneumonia goes away quickly and I'll be sending many prayers for you to feel better. Hang in there my dear friend and know I'm always here if you need me.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
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