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Regular Member

Date Joined Feb 2012
Total Posts : 114
   Posted 11/4/2013 11:38 AM (GMT -6)   
HI everyone.  about a year ago, I came on this site when my PC doctor thought I might had lupus due to elevated blood levels and a positive ANA test.  Lupus and other auto-immmune disease run in my family and she was very concerned.  Well found out that I have IGA Nephorpathy (stage 1 kidney disease and this auto-immune by the way).  I was sent to a rhuemy and found out I have a blood-clotting disored (I think it is anti-ph something or other).  He ruled out Lupus but I am starting to think I may need more testing.  Please let me know what you think about the following;
I am fatigued all the time (push through because I have four children all under 12)
Sorry muscles and hip joints ache (sometimes to the point that when I am standing or walking it feels like my leg is about to give out)
Tingling in left arm and leg (came one really strong in about the last 2 months)
Chest pains (not severe but it feels like someone with a really boney finger is poking me in my chest)
Headaches frequently (can take tylenol to help)
Dry itchy, scaly scalp (not sure if this is a sympotom of lupus)
Cold all the time or hot flashes (I am only 32 so not menaopaus)
Can anyone tell me if you think I should request more testing.  I will see my PC on November 18th.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/4/2013 12:11 PM (GMT -6)   
I would ask for more testing, because something is going on.
A good rhuemy will look at symptoms as well as blood work. Keep searching for an answer and don't give up.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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