Update:What is a Flare?

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MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 11/5/2013 8:01 AM (GMT -6)   
While I have not been diagnosed with Lupus and I am interested in know if what I am feeling is considered a flare.
 
I have achy back, shoulders and knees
My arms are tingling and feel heavy
Headache that did not go away with tylenol
Eyes hurt
 
I feel like death and I am at work (teacher) trying to push through
 
Any advice and information helps.  Thank you

Post Edited (MizPiggy31) : 11/11/2013 3:59:57 PM (GMT-7)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/5/2013 2:33 PM (GMT -6)   
A flare is an increase in symptoms. If you're feeling worse than it's a flare.

Does your doctor think you may have lupus and waiting on tests or seeing another doctor?

It's rough to try to teach when you feel so bad. I used to teach first graders. The last two years I worked I was in misery most days. Stress seems to make me feel worse. Also the fluorescent lights were bad for me. They seem to increase the flares for me.
Can you turn off the lights when the kids are not there?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 11/5/2013 3:53 PM (GMT -6)   
A flare is more symptoms than usual. Sometimes a flare means a new level of "average" if the symptoms are not controllable, but if they can be controlled and you get back to your usual level of symptoms then it's a flare.

The time-frame to get back to the usual spot varies from experience to experience, ie from person to person. Generally I don't use the world flare because it's so vague, but describe my Lupus as active, quiet, raging, etc.

Hope that helps.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 11/5/2013 6:00 PM (GMT -6)   
Thanks Lynwood and Couchtater.
 
I have not been diagnosed but I have IgA (auto-immune kidney disease) and doctors told me I might be susceptable to it in the future (5 family members have had it or has it now, MS also runs in family).  The first Rheumy I went to said my labs did not show it so he said not Lupus.  I think I have some symptoms as I have seen its affects on the members in my family.  I am going for a second opinion with a different Rheumy, I know my body and for the last year my body has been out of order (for lack of better term).
 
I was able to turn the lights out for about an hour today and it helped.  A

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 448
   Posted 11/5/2013 8:39 PM (GMT -6)   
In reference to the fluorescent lights, my son is a teacher and also has SLE. He has had a horrible time with headaches, body aches and fatigue being worse than normal due to the lights in his room and of course sunlight when he has parking lot duty. Having SLE myself for 16 yrs I was aware fluorescents can emit uv but was shocked at how much the lights in his room put out. I purchased an item on amazon that goes on his keychain and measures the amount of uv exposure of where you are located. The medallion lights up immediately upon entering his room! He now wears sunscreen to work, has treated all his clothes with uv protectant and taken the lights out that are above his desk and area where he lectures; this has helped immensely! Perhaps you could try a similar process to see if you get an relief.


Mother of 2 beautiful adult children and one amazing daughter in law, lupus SLE since 1997, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus SLE while in college. I take a slew of meds to many to mention, am on Benlysta infusions. I try to live each day with a positive outlook and count my blessings.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/5/2013 9:36 PM (GMT -6)   
They do sell special covers for fluorescent lights online. My school purchased them the last year I taught.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 11/6/2013 10:30 AM (GMT -6)   
Well I have an appointment on Monday with a new doctor. I will keep you guys posted.

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 11/11/2013 4:18 PM (GMT -6)   
Update:  I saw the new Rhuemy today and she was fantastic.  She was able to ask questions, I asked questions, told me the plan and we are moving forward.  She did a whole new set of blood, a hip x-ray is ordered (have to find an in-network site), wants me to see a dermatologist and she said she thinking more in line with Fibromyalgia but wants to wait for blood and other test to come back. 
 
Will keep you guys posted.  Thanks for responding to my post and helping cope.
 
Connie

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/11/2013 6:17 PM (GMT -6)   
Glad you found a good doctor who listens and is moving forward with you.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/11/2013 9:53 PM (GMT -6)   
Connie:

Sounds like this Dr was very good and listened to you. It's amazing how much Fibro and Lupus overlap in symptoms. A lot of lupus patients have Fibro and learn to deal with it. Unfortunately, Fibro can be very painful and it's quite annoying.

I received my Fibro DX in 1995 and the confirmation of my lupus didn't happen until June of 2001. It was first mentioned in 1987 that I could have Lupus. Lupus is just such a hard disease to DX, it took my Dr's 13 years before they agreed that I had and started me on plaquenil and prednisone. In March 2002 they then began giving me the immuno suppressive drugs and I've never been off of them since then.

I know this may sound bad but, here's hoping that you've got Fibro and not Lupus. I'm not saying I want you to suffer with Fibro, but Lupus can very difficult to treat in some folks and the drugs we have to take to treat it can be very dangerous.

Please let us now what she has to say and how you are doing. Take care and I hope your pain lessens.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Twit
New Member


Date Joined Nov 2013
Total Posts : 4
   Posted 11/12/2013 7:15 AM (GMT -6)   
To MizPiggy . . . it doesn't sound like how I got my first symptom but everybody is different.  My whole body hurt. It was a feeling like I had never had before.  Please go to your GP and see what he/she says.  If he/she thinks they are symptoms of any type of autoimmune disease you will be referred to a rheumatologist.

Twit
New Member


Date Joined Nov 2013
Total Posts : 4
   Posted 11/12/2013 7:20 AM (GMT -6)   
New at this!  LOL.  Glad you found a good doctor MizPiggy.  I was diagnosed with lupus over 3 years ago.  After 3 rheumatologists I finally found one that gave me meds.  The first one did (plaquenel) but I was allergic to it.  I am now taking Methotrexate.  I'm on my third week and it seems to be working well. 
 
I went on my first lupus walk in September.  It was very fulfilling.
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