I posted on here a while ago when lupus was first brought up as a apossibility and appreciated all the advice and support (so I am back
). I got to see a rheumy on Friday and the good news is she actually believes that something is wrong--and that's a first! My symptoms are as follows: pleurisy (which I think I have again now thanks to a nasty cold), chronic costochondritis, eye inflammation, cotton wool spots on my retina, mouth sores, severe fatigue, joint pain (but no swelling), headaches, shortness of breath upon exertion, skin issues, and I am sure others that I cant think of right now.
The rheumy thought lupus, but also listed vasculitis or sarcoidosis as possibilities. So she ordered a ton of blood work and a chest x-ray. I got a lot of the blood work back yesterday and everything looks ok for the most part- negative ANA, blood counts all normal, sed rate is fine. My c reactive protein was slightly high, and I guess it was in March too but no one ever told me. and very low vitamin D.
So do these results rule out autoimmune? Does anyone else have low vitamin D, and does that cause some of these symptoms? I am eagerly waiting to hear back from the rheumy (probably Monday) after the more specific blood tests for vasculitis come back from the outside lab. She did make it sound like she was going to treat me with SOMETHING no matter what--but she was also pretty sure I had lupus.
I know no one can tell me what I have over the internet, but I am wondering what the road to diagnosis looked like for you. From what I understand this limboland thing is common, so how did you get out of it?