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sueg
Veteran Member


Date Joined Aug 2013
Total Posts : 718
   Posted 11/10/2013 12:45 PM (GMT -6)   
Do any of you know about Central Nervous System Lupus--my Neurologist thinks I might have that and that it has caused white spots on my brain?
But to complicate things the Rheumatologist thinks the white spots are from Polio that I had as a child and the Radiologist who read the Brain Scan said it could be MS.
 
So now I just had a Lumbar Puncture done and am waiting for results. This might give them some answers.
 
If you had to guess what would it be?? 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/10/2013 7:04 PM (GMT -6)   
Let us know what happened with results. I have white spots too but the neurologist I saw didn't think they were important. I may go to a different one for a second opinion.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 11/11/2013 9:31 PM (GMT -6)   
Hi Sueg. Both Lupus and MS can cause white spots. I don't know if polio does. If you go to the link below click on CNS lupus. You'll find lots of info that I think you will find useful. Love, Butterflake
 
www.lupus.org/diagnosing
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/11/2013 10:42 PM (GMT -6)   
Hi Sueg:

Like Butterflake said both CNS Lupus and MS can cause white spots on the brain. The fact that they did a lumbar puncture, they are looking to rule out MS. I know that when people have white lesions on the brain and then they do a lumbar puncture they are attempting to rule out or prove that someone has MS.

A friend of mine from elementary school found out that she has MS back in the late 1990's. In the beginning she was really having a difficult time getting pregnant and it was determined that her MS was just to active. Once they started her on biologic meds for her MS she started feeling better. She still needed some help with fertility treatments, but now has two beautiful children one of each.

I hope that you do not have either one of the problem that has been mentioned to you. Hang in there while you wait to hear from with the results. Don't give up hope, if you have either one of the issues both disease can be treated and things will improve as soon as you start treatment.

Please let us know how things go for you. Remember, you can always get a second opinion, no mater what. You'll be in my prayers, hang in there.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/11/2013 11:21 PM (GMT -6)   
http://www.the-rheumatologist.org/details/article/968011/The_Brain_in_Lupus.html

I just found this article about white lesions on the brain and lupus.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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