Hi Yvonne, nice to meet you. My name is Trish and I am new to this site also. I was diagnosed 3 years ago. I am on my fourth rheum. and I am finally happy with how he is treating my lupus. Every day is different, you never know how you are going to feel. I get flare ups but I don't know of any damage to my organs, yet. Not to be gross but I woke up this morning and went to the bathroom and had blood in my stool. Luckily I went to this website and read that it is very important that I contact my doctor. Right now I am waiting for her office to
My lupus made it's entrance at a very stressful time and I think that is what brought it on. My husband and I had his daughter and her five young children living with us. It was a very trying time and I do believe that if they had not moved in I still wouldn't know I had lupus.
I am now taking Methotrexate weekly and it seems to be working. When I have a flare up I have to take steroids. I really don't like them but they sure work well.
about a year after my sister was diagnosed with rheumatory arthritis I was diagnosed with lupus. Hmm, isn't that weird? We don't know of anyone in our family that had either.
I also have bicuspid aortic valve which means I will probably have to have heart surgery at sometime in my life. I am 54 and I'm guessing it's not far away. I'm very nervous because I also have the clotting problem that goes hand in hand with lupus. Do you also have that disorder?
I'm very fortunate to have a very understanding and loving husband. It was hard for him to understand the whole disease but he ended up going to a few of my dr. appointments and it really helped him understand and he was able to ask questions about things that were on his mind.
Yvonne, do you have someone to help you through this? I hope so, I would hate for you to be going through this by yourself.
GTG, have to call the doc.