Gentle ((((((hugs)))))) I'm sorry my friend that you're in a nasty flare right now. I totally understand your frustration with this darn disease. It makes our lives so difficult all the time it seems.
I know that I never make plans in advance, and IF I even consider saying yes, I tell whomever I'm meeting or whatever, it will all depend on how I'm feeling that morning. It's a terrible way to live and it's very depressing. I so get what you're saying.
How do we get around this and move on ahead? I'm not sure, I've just adapted my lifestyle to I never say Yes to anything, until the day of or maybe the day before. I'm sorry that I've not been in touch by email or phone, but since starting radiation 7 days ago, I'm so totally wiped out, I don't even want to talk to my kid on the phone.
I have two treatments left and maybe if I'm up to it and you're up to it, we can talk on Sunday morning. I'll send you an email this Friday after radiation. Laura, you're not alone in the battle, we all understand the frustration, depression, pain, and just plain old being mad with disease. Whenever, you need to vent you come and do so. We're all here for you no matter what.
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.