Only 2 treatments left

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/13/2013 7:25 PM (GMT -6)   
yeah I only have two more radiation treatments left, thankfully. I have to say this time around with the radiation has been a real bugger for me. I'm so wiped out, I swear I don't know if I'm coming or going 95% of the time. I nearly fell asleep at the wheel yesterday while driving up to the med center.

Today, I was so tired and feeling so unwell, I canceled my therapy appointment. I never cancel these appointments, but I felt like I had to go to bed. They managed to get me out of treatment and seeing the Dr in under 3 hrs and 15 minutes. I was home almost at 1pm today, had a bit of lunch and crawled into my bed and I've been in ever since. Hubby, just brought me dinner in bed LOL.

I have to say that I feel TERRIBLE, I sure hope I'm not getting sick. Told the Dr how I was feeling and he said that with me down to only two more treatments I should be feeling that way. He said, not only am I'm off my normal schedule, but they are giving MORE radiation than before, and for MORE days than before. Even though it's going into my fingers, my body does get a fair amount of the radiation into my body. That being said, I should be really tired and if I need to rest then I should just do that. He also suggested I get my H/H tested ASAP, said I'm to pale and the dark circle around my eyes look bad.

All of my joints hurt like heck and I feel as if a bus or train ran me over. Like I said I sure hope I'm not getting sick. I've been very good at wearing my mask when out in public devil people stare and ask whats wrong with me and can I make them sick. Especially, if we're in an elevator, I respond, NO, I'm getting radiation and have NO IMMUNE SYSTEM. I think it's going to be a very long winter for me.

My pulmonary Dr called me and wanted me to come in this week and see her for my PET/CT scan. Told her there was no way I could do that. She asked if I would be down there at Walter Reed next week and I said yes. I'm due for blood work, and a port flush, she asked me to come by the clinic after I was done. She didn't make and appointment for me, just said to tell them I was there.

Now, I wasn't thinking about anything and didn't ask, but Bill thinks it's odd that she went from seeing me on the 25th to the 22nd, to trying this week, to seeing me on Monday the 18th. I'm sure hoping that she's going to tell me that, YES, I do have an atypical infection. However, I am scared that maybe she has some bad news for me. As bad as my luck is, I can't help but wonder, is she going to tell me I have lung cancer. I do know from the Pulmonary Fellow, that the nodule they were looking at in my upper lobe in my right lung is no longer there. He did say though that I've developed SEVERAL other nodules in that lobe, and that my regular Dr would be better to explain it to me.

My PCP tried to reach me about my right arm and ribs, but we are playing phone tag. I'll email her again tonight and hopefully, we will communicate tomorrow. I really need an x-ray of my elbow, I can not move the stupid thing anymore. The pain is sky high and well......... I'm just done with everything. Guess that's all the news here. I hope to be feeling a lot better next week.

You all have a good night and may your pain levels be low tonight and I hope you have a great day tomorrow. Take care of yourselves and hang in there.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 11/13/2013 9:03 PM (GMT -6)   
 
Hi Barbara,
 
       I am so happy to hear that you are almost through your radiation treatments.  What a relief that must be.  I also smiled when you said you felt like a truck ran over you.  I have definitely been there.  I sometimes don't think that people who do not suffer from a chronic illness really understand what it is like to live in our bodies.  That is why I love this site so much.  So much and love and support.  It really does help.  Lots of good thoughts and warm hugs coming your way.
 
Love, Laura

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 451
   Posted 11/13/2013 10:42 PM (GMT -6)   
Sorry your feeling so drained and just poorly in general from your treatment. Praying the radiation is working and you're feeling better soon!

Hugs to you, God Bless;

Melissa


Mother of 2 beautiful adult children and one amazing daughter in law, lupus SLE since 1997, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus SLE while in college. I take a slew of meds to many to mention, am on Benlysta infusions. I try to live each day with a positive outlook and count my blessings.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/13/2013 11:46 PM (GMT -6)   
Hang in there, honey. Two more and you're done! (Happy dance)
Rest well and feel better soon.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 11/14/2013 12:19 AM (GMT -6)   
Rest - eat & sleep & pet the cat. Been thinking of you all week, you can get thru this. Yes you can!

Hugs
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/14/2013 8:41 AM (GMT -6)   
Barb, I'll catch ya later today. I hope you don't have a terribly painful time of it.
love ya
lisinopril,lortab,azithromyazin,nexium,,predisone,plaq.,pottasium,xopenex,advair,spirivia,Vitamin D,centrum silver, lasix, klonopin., fish oil, b12 iron.
SYSTEMIC SCLEROSIS SINE SCLERODERMA
There are more things in heaven and earth, Horatio,
Than are dreamt of in your philosophy.
"Don't stop fighting" Do not go gently into the night-rage against the dying of the light!

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/14/2013 10:03 PM (GMT -6)   
Thanks everyone, you're my cheering squad. This has been so hard on me this time. The last radiation was a piece of cake compared to this set. I'm thinking it's the heat therapy that's made it so difficult. They are training a new person on the system that delivers the heat. She tried out yesterday after I left, so she would know what the patient feels.

Today she said to me, "I don't know how you stand that", it burns the skin and "I can't begin to imagine what it feels like for you, having those warts that are so painful anyway". She's correct it's very painful to have the heat on them, plus the pressure from the bag water that sits on top of the wart. I noticed today I have a nickel sized blister and burn on the pad of my left thumb. It's so so painful, but they treated right thru it today.

I had my iPod playing loudly and the tech was feeding me cookies trying to distract me. It was the longest 1 hour of my life today. I'm ever so thankful that tomorrow is the last treatment. It will be my right thumb that will have the treatment. No blisters there thank goodness. I went to PT tonight and Matt worked on my back and he informed me that I have a huge know on my left side. He hooked me up to a tens unit for 15 minutes. He suggested that I talk to my Dr about prescribing me one for home.

I'm so wiped out and I'm feeling so bad, I sure hope that I start to bounce back by Monday. Kinda nervous about Monday too, I'll get my PET/CT scan results then. Sure hope I'm not going to get more bad news.

Okay, I'm off to bed hope you all have a good night and I'll let you know how tomorrow goes. Thanks for being here for me, you have no idea how much having you all in my corner means.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
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