I only have two more radiation treatments left, thankfully. I have to say this time around with the radiation has been a real bugger for me. I'm so wiped out, I swear I don't know if I'm coming or going 95% of the time. I nearly fell asleep at the wheel yesterday while driving up to the med center.
Today, I was so tired and feeling so unwell, I canceled my therapy appointment. I never cancel these appointments, but I felt like I had to go to bed. They managed to get me out of treatment and seeing the Dr in under 3 hrs and 15 minutes. I was home almost at 1pm today, had a bit of lunch and crawled into my bed and I've been in ever since. Hubby, just brought me dinner in bed LOL.
I have to say that I feel TERRIBLE, I sure hope I'm not getting sick. Told the Dr how I was feeling and he said that with me down to only two more treatments I should be feeling that way. He said, not only am I'm off my normal schedule, but they are giving MORE radiation than before, and for MORE days than before. Even though it's going into my fingers, my body does get a fair amount of the radiation into my body. That being said, I should be really tired and if I need to rest then I should just do that. He also suggested I get my H/H tested ASAP, said I'm to pale and the dark circle around my eyes look bad.
All of my joints hurt like heck and I feel as if a bus or train ran me over. Like I said I sure hope I'm not getting sick. I've been very good at wearing my mask when out in public
people stare and ask whats wrong with me and can I make them sick. Especially, if we're in an elevator, I respond, NO, I'm getting radiation and have NO IMMUNE SYSTEM. I think it's going to be a very long winter for me.
My pulmonary Dr called me and wanted me to come in this week and see her for my PET/CT scan. Told her there was no way I could do that. She asked if I would be down there at Walter Reed next week and I said yes. I'm due for blood work, and a port flush, she asked me to come by the clinic after I was done. She didn't make and appointment for me, just said to tell them I was there.
Now, I wasn't thinking about
anything and didn't ask, but Bill thinks it's odd that she went from seeing me on the 25th to the 22nd, to trying this week, to seeing me on Monday the 18th. I'm sure hoping that she's going to tell me that, YES, I do have an atypical infection. However, I am scared that maybe she has some bad news for me. As bad as my luck is, I can't help but wonder, is she going to tell me I have lung cancer. I do know from the Pulmonary Fellow, that the nodule they were looking at in my upper lobe in my right lung is no longer there. He did say though that I've developed SEVERAL other nodules in that lobe, and that my regular Dr would be better to explain it to me.
My PCP tried to reach me about
my right arm and ribs, but we are playing phone tag. I'll email her again tonight and hopefully, we will communicate tomorrow. I really need an x-ray of my elbow, I can not move the stupid thing anymore. The pain is sky high and well......... I'm just done with everything. Guess that's all the news here. I hope to be feeling a lot better next week.
You all have a good night and may your pain levels be low tonight and I hope you have a great day tomorrow. Take care of yourselves and hang in there.
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.