Hi Carol, I also have scleroderma. I was found to have mild pulmonary hypertension and see a pulmonologist on a regular basis. Do you go in for regular CT scans and all the breathing tests? Last year during a routine visit, it was discovered that I had cancer in my right lung. The lower lobe was removed. I do understand what it is to have shortness of breath. I continue to exercise daily. I have seen some improvement.
I would sit down with your doc and ask him to explain the nature of your fibrosis and what you can expect, and what exercise if any would be helpful. Wishing you the best :)
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"