Hi everyone, I just wanted to thank you all for your input. Couchtater I am so sorry to hear about your aunt. that doesn't give her much to work with that's for sure. I had a CT scan done less then 2 months ago and an xray done 2 days ago. I already knew I had PF because you are extremely lucky if you have "sine" scleroderma and not have PF. at least 90% of the people with scleroderma have lung involvement. I've been on o2 since about 2002. It's actually a good record. Robin I agree I was tested for a transplant but then they had me do PULM therapy and it truly did help me a lot. It kept me out of the hospital for quiet awhile. I know that my lungs are scared from all the pneumonia, inflammation scleroderma. my bunches of grapes look more like raisins.
My pulm put me on singular for asthma?? and this s going to be the second time I've seen my rheumy since I moved back to Arizona. So I need to set and make a list since we have no rupour.
Barb yes I will keep you up to date about what's happening. I know its hard to kep up with things LOL I mean we only speak once a day. Maybe you can help me put to get a list together.
well everyone thankyou so much for responding to me.
Post Edited (okie) : 11/15/2013 10:04:17 AM (GMT-7)