need help question about lupus

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mystery1
Veteran Member


Date Joined Mar 2013
Total Posts : 514
   Posted 11/15/2013 4:45 PM (GMT -6)   
I have not had a workup for lupus. I have been told I have lyme disease. I had a rash on my arm looked similiar to a bull's eye about 2 yrs ago. I have terrible headaches, ringing in my ears, burning on my skin, heart palpitations, muscle aches, low thyroid, neck pain.

could I have lupus? and can you have lupus without the rash on your face and stuff like that?

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 448
   Posted 11/16/2013 12:14 AM (GMT -6)   
Mystery1,

The symptom Lyme and Lupus are so very similar it would hard for a non medical professional to give you those answers in my opinion. If you feel your current treatment is not working or perhaps your symptoms are increasing I urge you to ask your specialist to test you for lupus. If nothing else this will give you peace of mind.


Mother of 2 beautiful adult children and one amazing daughter in law, lupus SLE since 1997, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus SLE while in college. I take a slew of meds to many to mention, am on Benlysta infusions. I try to live each day with a positive outlook and count my blessings.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/16/2013 2:31 AM (GMT -6)   
I agree, get tested for lupus and see.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

LivingwLupus1994
New Member


Date Joined Nov 2013
Total Posts : 2
   Posted 11/16/2013 11:55 PM (GMT -6)   
Mystery 1,
Hi
Lyme and Lupus do have similar symptoms, however, they need different doctors to treat them. Lupus is managed by a rheumatologist and ideally a team of support specialists--cardiac doc, lung doc, kidney doc, dermatologist, neurologist, orthopedist, psychiatrist, ophthalmologist, gastroenterologist. Plus any other doctor for any other medical issues you may have. Lyme disease is more often managed and diagnosed by an infectious disease doctor, who hopefully draws on the above team members as needed.
I have had lupus for 19 years diagnosed plus 6 years of doctors telling me I was just depressed. My son was diagnosed with Lyme disease about 6 weeks after my husband got two deer ticks off his head after going camping.
Be well.
lupus, sjogren's, reynauds, cortical atrophy, brain meningioma, spinal meningioma, severe insomnia, scarred lung, chronic pancreatitis, stage 1 ckd, ibd, vitiligo, hypothyroid, depression, losing short term memory.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 11/17/2013 8:14 PM (GMT -6)   
Although it is very common you do not need the rash to be diagnosed with lupus. Every case is different. I have had lupus for 8 years and possibly 23 years but never had any skin rashes.

Bill

JJ1226
New Member


Date Joined Nov 2013
Total Posts : 12
   Posted 11/20/2013 12:11 AM (GMT -6)   
Isn't the rashes and the butterfly rash called Discord Lupus? They thought I had lyme disease at first. I never had any rashes I have SLE Lupus.
JJ

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/20/2013 2:07 AM (GMT -6)   
Discoid lupus is round sores on the skin.

I don't get the butterfly rash but my whole face turns bright red. I look sunburned during a flare.
I do get rashes on my arms when I'm in the sunlight. They itch a lot too.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

JJ1226
New Member


Date Joined Nov 2013
Total Posts : 12
   Posted 11/20/2013 10:31 PM (GMT -6)   
Thank you Joy for the infomation. I'm happy that I found this site.

In my little town there is only one rheumatologist so I travel 30 miles one way to see another. I don't have any confidence in the one that is here in my town.

Blessings
JJ

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/20/2013 11:10 PM (GMT -6)   
There is none in my town. I travel 45 minutes to meet mine. He actually travels 45 minutes to his satellite office to see me and others in the area.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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