Hey Lynn, Joy, and Laura:
Thanks for the hugs, well wishes, and advice on the aloe. Well, I managed to get home at 6pm this evening, it's been a very, very long day for me. By the time I got my tires bought and mounted I was pretty late for my appointment. I didn't leave the medical center until after 1:50 pm today.
I then needed to complete errands that needed to be done. Lastly, Bill wanted to meet somewhere for dinner as he didn't do any cooking over the weekend. He and I had intended to make cabbage rolls but got sidetracked and it didn't happen. Everything, that we do have to cook is in the freezer and needs to be taken out. So, we went out to dinner which was a total bomb.
I've been craving Fish and Chips, so we went to a place that was recommended. Order that and sat down to eat our dinner. They used Whiting Fish and floured it, instead of beer battered fish. The tarter sauce was so sweet I couldn't eat it at all. All I had for dinner was an order of very well cooked french fries and a large lemonade. I did has some Sushi, California Roll, for lunch. Now I'm eating a bedtime snack of a pear. I know not much food today, I just don't feel well and food isn't appealing.
As for my appointment with my Pulmonary Dr, I'm not sure what to make of it. She said that the nodule in my upper right lung is 7mm in size and they aren't certain about
it. Because of all that's going on with me she wants to repeat the PET/CT again in January, before requesting a biopsy of the nodule. Also, I had an area light up in my bowels. So, they will look at that area again too at that time. She said it may just be inflammation in my bowel, but if it's lighting up again, I'll most likely need a colonoscopy for them to take a look at things.
I don't have to much colon left as they removed just over 3/4 of it back in 2005. The area that showed the uptake of the radioactive sugar dye was at the very top of whats left of my colon and into my small bowel. I'm sure hoping that it's gone in January, I really don't want to go thru a colonoscopy, I've had way to many prior to my surgery in 2005.
My thumbs are so sore and painful, I can not bend them at all, the swelling is really bad too. I completed all my lab work for the test to see if I'm going on Foreto for my bones or not. I now need to do a 24 hour urine, once I've completed that, my endocrinologist will let me know if I'll be starting Foreto. If he decides to put me on this drug, I'll have to give myself a shot EVERYDAY FOR 2 YEARS. Sigh, seems like my life is never easy.
My left foot, the one I ruptured my tendon on, is acting up again. I can barely stand on it by 5 in the afternoon, if I've been up on the darn thing all day. The pain is along the very back of my heel up into the Achilles tendon area. I can't begin to describe how painful that area is. I know Matt, my physical therapist, said that it's full of knots and inflammation. My lower back is in the same shape and honestly, my pain is up thru the roof. I have my long acting pain meds that I take 3 times a day. I also, have short acting stuff for break thru pain, but I really try to limit home much of that I take.
By doing that though, I'm in never ending severe pain. I just am so sick and tired of all of this stuff. I told Bill tonight that IF I need a colonoscopy and broncoscopy and they plan on doing it awake, there's NO WAY
I'll let them do that to me. I'd rather let cancer eat me alive than go thru either of those awake.
My quality of life is dwindling rapidly and this is really NO way to live ones life. My breathing has worsened and every joint in my body hurts 24/7. Plus my chest pain is bad from the pericarditis and of course all of my fractured ribs that I have. My PET/CT scan results shows that I have a total of 8 fractured ribs and two of my ribs have fractures in two places. My Dr told me to tell folks not to bear hug me, if they're gonna hug me it better be gently. She said with this many fractured ribs it's going to take a long time for the chest pain to get better. She's also thinking that the ribs may be contributing to my Oxygen levels being low. I was at 85% with 2 liters of oxygen on this afternoon.
Well, I'm off to bed now, I feel like I can sleep forever. I wish I could, but I have a 9am Dr's appointment, then I'll have PT later in the afternoon. I hope you all had a good day and that you're feeling okay. May you all have a wonderful night sleeping and no pain. Will update tomorrow when I can, again thanks for being there for me. I really don't have anyone but you all here at HW>
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.