Restless legs and PLM

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Veteran Member

Date Joined Jun 2005
Total Posts : 541
   Posted 11/18/2013 10:56 PM (GMT -6)   
A few months ago I was diagnosed with restless legs and then about a month ago I started having problems with my whole body jerking when I was falling asleep. It got so severe I felt that if it lasted longer I would have a seizure. Then my hand started doing repetitive movements while I was sleeping that would wake me up. The doctor put me on Klonapin and said that I had Periodic Limb Movement disorder. Well last night I forgot to take the Klonapin and I counted three to four times of my hand just jerking rapidly like I was trying to make a fist and then after all that stopped my other arm just flung out by itself and hit my water glass and knocked it to the floor.

My problem is that I am also on Percocet for pain. Can't take it with the klonopin so I can either treat my pain or the jerking. It is very frustrating. I am going to see my doctor on WEd to discuss all this.

Just wanted to see if anyone has experiences with this and any advice you can give.

Mary Ann

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 11/18/2013 11:09 PM (GMT -6)   
Hey Mary Ann:

Man I'm sorry to hear that you're having this problem. It sure sounds rough on you, I have to say I've been lucky so far and not had issues with the jerking movements on my body. I better go knock on some wood be right back, as you know I have terrible luck. LOL.

Sorry, I'm punchy tonight had a very long day. I understand thedelimea pain issue Mary Ann and you're in a really difficult spot. You're being forced to make a choice and that's not far at all. I sure hope that you're Dr can offer you some sort of solution to this problem, i hate it that you're suffering, there's got to be backing for you. You'll be in my prayers and I hope all goes well on Wed.

DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/19/2013 12:32 AM (GMT -6)   
I have shaking in my arms and legs too. Mine doesn't get as strong as yours but it does get frustrating.
Mine is more like twitching most of the time. If woken up out of a sound sleep my arms are uncontrollable in their shaking for about two minutes.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Nov 2013
Total Posts : 22
   Posted 11/19/2013 12:21 PM (GMT -6)   
Double check about the meds... I have taken percocet and klonopin both together and haven't been told this could be a problem.

Regular Member

Date Joined Jan 2013
Total Posts : 47
   Posted 11/20/2013 1:51 AM (GMT -6)   
NanaBee, I can understand your frustration when it comes to not being able to take meds together. I have had serotonin syndrome before and now I have to constantly check for interactions between anything I take. I use the interaction checker and my doctor to verify interactions. When I checked Percocet and Klonopin, it states it can cause increased dizziness, difficulty concentrating, and drowsiness but no serious interactions. You of course want to verify with your doctor that its ok to take them together. Hope this helps!
Nicole- 25, married, no children
Endometriosis, Lupus, Raynaud's, Degenerative Disc, Migraines
Meds- Multivitamin daily, Lo Loestrin Fe daily, Plaquenil daily, Prilosec daily, Lyrica BID, Folic acid daily, MTX injections weekly, Celebrex BID prn, Tylenol prn, Tramadol prn, Dilaudid prn, Zofran prn

~Don't worry about tomorrow, tomorrow will worry about itself. Every day has enough trouble~
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