Posted 11/20/2013 4:00 PM (GMT -7)
I have a rheumy, cardiologist, pulmonologist and my PCP who all work together to try to keep the MCTD under control. My local pharmacist is always on hand to answer my questions. I know that since I've been taking the methotrexate, the RA progression has slowed down joint damage, my scleroderma hasn't created any new "dents" in my limbs and the skin tightening is limited to my fingers, toes and some areas of my face. At one time, I was sun sensitive and now I'm not. My rashes and lesions are no longer frequent.
I'm very proactive about researching my meds and ask my docs lots of questions. I would love to be med free. I feel like I'm between a rock and a hard place. If I stop taking the meds, will the disease progress?
Having heart disease, is something that came on after the MCTD diagnosis. My heart meds help with my left ventricle working more efficiently.
Pain is something I control with meditation, and distraction. I use muscle relaxers when flares get too bad.
Eating healthy and exercise is a lifestyle for me. A positive attitude, my faith, family and friends get me through.
I guess many of us feel like we are in a dilemma over meds. Taking B-12, and vitamin D are 2 supplements that have helped. I also take presciption folic acid because of the Methotrxate. I've been on a SNRI, savella for over 4 years for the fibro, and will see about weaning off that med.
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"