Confused and worried

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Jean53
New Member


Date Joined Nov 2013
Total Posts : 2
   Posted 11/26/2013 9:42 PM (GMT -6)   
Hi. I am a new member. about four weeks ago, I started waking up the stiff sore fingers also some soreness in my toes. I took alleve for a couple of weeks, and it helped some but the pain and stiffness didn't completely go away. Went to the doctor, he thought it was probably osteoarthritis. Sent me for an arthritis panel. Everything came back normal except a very high ana 1200. He said we have to rule out lupus. I am 60-year-old female, have always been very healthy, and am very active. I have no other symptoms. I have no sun sensitivity, and I do a lot of cycling during the summer months. Now I am scheduled to see a rheumatologist in two weeks. Is lupus really likely with just these test results and painful stiff joints? I'm kind of freaked out.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/26/2013 10:04 PM (GMT -6)   
Hi Jean53:

Welcome to the lupus forum, I'm sorry that you had to find us though. I hate to hear that you're having issues with stiff fingers and toes. The positive ANA is worrisome I'm certain. However, since you have no other symptoms of lupus (you must have 4 out of the 11 to have lupus) I wouldn't freak out to much.

People can have a positive ANA from having a cold. My daughter walked around with a positive ANA since she was very young like age 7 or so. She's now almost 21 and hasn't been DX'd with lupus yet. She has a few symptoms but nothing to say yep for sure.

I've had lupus for 26 years now, my symptoms began at age 17. They Dr's mentioned lupus to me at age 22 and it took them 13 years before saying yes I did have it. It took them that long to treat me, and I truly believe it really has made my condition so much worse.

If you've not checked out the Lupus Foundation website you should, it will list the symptoms and you can get a better look at what we have. If you start having any symptoms I'd let your Doctor know and have them refer you to a Rheumy. They are the best Dr's to DX Lupus and they are the best at treating the disease.

I really hope you don't have lupus, and it's just that you have a positive ANA. Try not to worry or freak out to much yet. Let the Dr's run their tests and see what they say. Please stop by anytime if you have any questions or want to post an update on how you're doing.

Wishing you the best and I hope you get a clean bill of health.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Jean53
New Member


Date Joined Nov 2013
Total Posts : 2
   Posted 11/26/2013 10:14 PM (GMT -6)   
Thanks, Barbara. Actually I have done a fair amount of research Olivis, maybe too much. I do understand that you have to have four symptoms. I've had canker sores in my mouth often on throughout my life. That's the only other something I can really think of. I also do you know that you can have a positive Ana for little or no reason. But I do have this joint pain in my hands and my feet, and naproxen helps a lot but if I stop taking it I really have a lot more pain and stiffness lasts for like half a day. So, something go seem to be going on. Yes I just need to try to relax and wait for the rheumatologist says. I do really appreciate you taking time to respond to my post.

Jean53
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