Brain demyelination from SLE damage

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Date Joined Aug 2013
Total Posts : 718
   Posted 11/27/2013 9:49 PM (GMT -6)   
The Neuro doc thinks the demyelination that shows on my Brain Scan is from SLE. But now I am wondering what these symptoms I have had a month ago are from. But I guess that numbness, headaches, and weakness can all be from Lupus affecting the brain. I never thought it would do so much damage. Just surprised----altho this m/b something else down the road, if more demyel. shows.
Have any of you heard of this or have it yourself and what has happened?

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Date Joined May 2005
Total Posts : 7667
   Posted 11/27/2013 10:04 PM (GMT -6)   
I've never heard of demyelination being related to Lupus (only heard of it associated with MS), but when I do a search on "demyelination lupus" a few things do come up.

I guess they would treat it in a similar way to how they treat it in MS?

Sorry I can't be of more help.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/28/2013 1:34 AM (GMT -6)   
I knew SLE could play around in your brain but never heard of that.
What does he have planned for you treatment wise?
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Veteran Member

Date Joined Apr 2006
Total Posts : 1335
   Posted 11/28/2013 10:34 PM (GMT -6)   
Did not know that demyelination was associated with SLE but apparently it is. NIH article on the subject below.

MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Veteran Member

Date Joined Aug 2013
Total Posts : 718
   Posted 11/28/2013 10:53 PM (GMT -6)   
I only got to talk to the Neurologist for a short time while he was doing an EMG test on me. And I will not see him again to discuss results until mid- January. So it is just a lot of waiting for now and not many answers.

I have a list of questions and will bring my daughter along so that she can ask even more and help me to remember the answers!!
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