I hate my life!

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Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 11/29/2013 11:10 PM (GMT -6)   
When my Lupus was more active I got in the habit of staying home and doing the minimal things - groceries, bills, laundry & trash - .

Now my Lupus is quiet but I'm in the habit of being LAZY. I know I can do things but can't seem to get off my butt and actually DO them.

That doesn't lead to having very much fun.
Just sayin'.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/29/2013 11:43 PM (GMT -6)   
I only post here occasionally, so I really don't know you well. My heart does go out to you. I think when we are feeling down it can rob us of motivation. I don't work outside the home so I know it is important not to keep myself isolated. Each day I have to plan an activity to get me outdoors. I'm a walker and that has helped with my energy level and lifting my spirits. It is also a great stress reducer.

Planning to do lunch with friends during the week gives me an opportunity to laugh and have some fun. Finding something you truly love to do like read, paint, write, decorate...whatever, is an outlet for frustration.

You are important, so take some time to pamper yourself...you do so much for others. You deserve to do something fun for yourself....indulge...you are worth it :)

Hugs, Robin
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/30/2013 3:13 AM (GMT -6)   
I know just what you mean, Lynnwood.
My good days are spent doing the same days as bad days. We tend to get in a rut sometimes. If tomorrow is a good day I'm going walking. That's my plan and I'm sticking to it. I need to go to the store too so I may just blend the two together and not ride the cart tomorrow. I'll need to brace my knee up too to keep it strong.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 11/30/2013 11:09 AM (GMT -6)   
Hey Lynnwood. I'm sorry you have a case of the lazys. The following may not apply to you, but I figured it's something you should consider. Several years ago when I was only on plaquenil and trying different antidepressants, I would be in bed unable to do anything. I came to the conclusion that if I would lie there thinking of all the things I wanted to do, then lupus was causing my total inactivity. If I would lie there and didn't want to do anything at all, then depression was the culprit.
 
That being said, I know you're not lazy. As a matter of fact, you are one of the most active lupies I know. Perhaps your body is telling you that you still need to take it easy. I think you should keep some spoons in reserve a little while longer. You'll know when it's time to be more active. Love You, Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 11/30/2013 12:40 PM (GMT -6)   
That sounds so familiar. Another thing that is always in the back of my mind: what is too much? How much can I get away with doing before my body starts to rebel and starts to flare? That, in itself, will sometimes cause me to hesitate before starting something. Sometimes I just have to kick myself in the behind! Wish you could come help me put out the Christmas decorations! lol
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 12/1/2013 9:43 PM (GMT -6)   
 
I sometimes find that when my Lupus is inactive (like now), I hesitate before leaping into too much activity.  The reason:  Too many time I overdid it when I was feeling good and paid the price later with an intense flare.  I find that sometimes I need and crave that quiet, lazy space.  It's where my best thinking and creativity occur.
 
Love,
Laura

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 12/1/2013 11:19 PM (GMT -6)   
Well, I can only think of things I *have* to do, but since none are really life-threatening I don't do them. Can't think of anything fun, but certainly healthy enough.... I mean, how can you got to the grocery store, very hungry, and still find nothing you want to eat....not even junk food is appealing.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/2/2013 11:06 AM (GMT -6)   
Lynn,

Could you be suffering from burnout? Having a chronic illness, it is always natural to feel some uncertainty about our future and the unpredictability of our conditions. When you add all the everyday stressors it can become overwhelming.

Sometimes it is difficult to cope when we feel this way. Maybe talking one on one with someone you could express your feelings about your illness and how it is affecting your lifestyle. I hate to see you suffer when there is help available. I hope I'm not speaking out of line...you just seem so sad...sending gentle hugs and wishes for happy days for you!

Hugs, Robin
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 12/2/2013 4:54 PM (GMT -6)   
Thanks, all.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/4/2013 11:51 PM (GMT -6)   
Lynn,

I'm hoping that things may have improved some. I hate that you're not enjoying things in life at the moment.

I know that your lupus seems to be quiet and overall you are physically feel pretty good. I'm not sure I can explain why you feel the way you do.

I'm worried about your loss of appetite, are you having any issues with your stomach? You need to eat something and when nothing is appealing its very hard to do. I truly am sorry about that, maybe you should come up and stay with Bill and I. He's a great cook maybe he could tempt you back into wanting to eat again. Please remember our door is always open for you.

One last thing, I know today is a special day for you. I hope you had a good day and was able to get out and do something fun and have something YUMMY to eat. Please take care and I'm here if you need me, anytime day or night.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
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