Nose sores and voice issues

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EnglishSue
Regular Member


Date Joined Nov 2013
Total Posts : 22
   Posted 12/2/2013 12:54 PM (GMT -6)   
So with my recent new diagnosis of a 'lupus-like' disease instead of an 'arthritis-like' disease I guess I feel better that after more than 7 years I've finally found a doctor that is willing to take that extra step and give me an 'almost certain' diagnosis. I have this as well as fibromyalgia.

I have scared myself stupid, as I'm sure a lot of forum residents have, by trying to self-diagnose through the years. Now finally I can narrow this down to try and better understand what's going on with me.

A couple of things I've noticed in addition to the usual symptoms I have (muscle and joint pain, leg weakness, terrible inflammation, pain from my scalp down to my toes, bowel problems, eye problems etc) I have started with nose sores too. I have had probably four in the last two months. These come on without having a cold or flu or anything and last three or four days at least before they go away. The sore will come to a head and I usually have to nono squeeze my nose to 'deflate' it and then it starts to go away. I just wondered if anyone else has these nose sores and what they do to treat them/cope with them. If I don't 'deflate' them, then it becomes difficult to breathe through that nostril.

I have also realized I have a strange symptom with my voice too, as I sometimes out of the blue sad have problems talking, and my voice sometimes goes away completely. Does anyone else have this? I guess it's another one of those things I will have to learn to live with?
Sue - English transplant living my American Dream.
Living with undiagnosed disease since about 2005. Many symptoms including joint and muscle pain, inflammation and pain everywhere from scalp to ankles.Large intestine not working - removed. Right sided weakness, frequently unable to walk, memory problems, restless legs, body cramps esp in back and legs, eye and facial twitches. Also fibromyalgia.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/2/2013 3:54 PM (GMT -6)   
I have had nose sores forever - not quite what you're describing. If you get a chance to show to your Dr you probably should. When you first notice these coming on, try taking your temperature - mine seem to be related to mild fevers, and the fevers seem to be random.

And yes, sometimes my vocal cords seem very dry and my voice somewhat odd or hoarse. Mine isn't often enough to talk to the Dr about, but if this is happening more often than not it's certainly worth bringing to the Drs attention.

Hope you feel better soon!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/3/2013 1:56 AM (GMT -6)   
I was getting hoarse from acid reflux. You might want to get checked for that too.
I get nose sores but they don't swell up like that.
Rinsing my nose with saline solution and rubbing Ayr gel on them seem to speed up healing with me.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

EnglishSue
Regular Member


Date Joined Nov 2013
Total Posts : 22
   Posted 12/3/2013 11:59 AM (GMT -6)   
Thank you both for your advice, glad to know it's not all in my head!

I am so glad I found this forum. So much of what I've been through, I went through on my own before I got married almost four years ago. My husband is such a trooper and completely sympathetic and caring when I have a flare up. It was a hard transition from coping by myself to letting someone else take a little of the burden on. This forum means I can take a little stress off him and 'vent' to my new buddies... thanks!
Sue - English transplant living my American Dream.
Living with undiagnosed disease since about 2005. Many symptoms including joint and muscle pain, inflammation and pain everywhere from scalp to ankles.Large intestine not working - removed. Right sided weakness, frequently unable to walk, memory problems, restless legs, body cramps esp in back and legs, eye and facial twitches. Also fibromyalgia.

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 448
   Posted 12/3/2013 1:40 PM (GMT -6)   
The larynx can become inflamed with lupus too according to my Rheumy.

EnglishSue
Regular Member


Date Joined Nov 2013
Total Posts : 22
   Posted 12/4/2013 10:28 AM (GMT -6)   
Thanks everyone. At least my husband thinks my voice sounds 'sexy' when I start going hoarse, so I suppose that's one benefit. It started again today, just out of the blue, no reason. And, I'm at work, so people are recognizing me when I answer the phone! Oh, what fun!!
Sue - English transplant living my American Dream.
Living with undiagnosed disease since about 2005. Many symptoms including joint and muscle pain, inflammation and pain everywhere from scalp to ankles.Large intestine not working - removed. Right sided weakness, frequently unable to walk, memory problems, restless legs, body cramps esp in back and legs, eye and facial twitches. Also fibromyalgia.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/4/2013 9:51 PM (GMT -6)   
Sue, just wanted to say welcome, but I'm sorry that you needed to find us here. There are many great folks here who have loads of experience with lupus.

I've had lupus for 26 years now, and I've been on high dose steroids for 13 years now. It doesn't seem to matter anymore for me, I'm always in a flare. I get nasal and mouth ulcers all the time. I've not had any like you described, but we are all so different when it comes to symptoms.

I'm always hoarse sounding too. My Dr has mentioned having it checked, but I'm dealing with so much I don't want to dig into it. I certainly don't need another DX or problem.

I sometimes wonder if I injured my vocal chords when I pulled out my ventilator tubes while in the ICU over two years ago. I notice food and liquids back up easily into my sinus cavity. It's very possible I put a hole back there when I yanked them. imnot willing to let the ENT dig back there either, LOL. With all I've been thru I'm a HUGE BABY when it comes to sticking things up my nose or down my throat.

Anyway, if you're very worried about the hoarse sounding voice I'd suggest you see an ENT to take a look. Hope you feel better soon, looking forward to getting to know you better.

Hugs,
Barbar
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

EnglishSue
Regular Member


Date Joined Nov 2013
Total Posts : 22
   Posted 12/5/2013 3:11 PM (GMT -6)   
Hugs right back to you Barbara.. and I said a thank you in one of my other posts where I was looking for bed recommendations.

Take care of you.
Sue - English transplant living my American Dream.
Living with undiagnosed disease since about 2005. Many symptoms including joint and muscle pain, inflammation and pain everywhere from scalp to ankles.Large intestine not working - removed. Right sided weakness, frequently unable to walk, memory problems, restless legs, body cramps esp in back and legs, eye and facial twitches. Also fibromyalgia.

Quiet1
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/12/2014 11:52 PM (GMT -6)   
Sue, I have had nose sores but they weren't as severe as yours are, however, they would last for weeks at a time. I have not had any for many months and I assume that is accredited to starting Benlysta infusions. I also had a problem with my voice. I was hoarse for over 6 months and at times my voice would go away completely. After numerous test, they determined that it was acid reflux backing up in my esophagus. I didn't believe them at first because I didnt experience any heartburn etc that you would expect with acid reflex. They finally convinced me that I needed to treat it to void it cussing more severe damage. I had Nissan Fundiplication surgery which tightens the sphincter between my esophagus and stomach to keep the acid from backing up. I am no longer hoarse. There can be different side affects for the surgery. I experience chest pains if eat too much (which is far less than I used to eat). Also same pain if I drink high alcohol content drink. Sometimes the pain will be so bad I get the dry heaves. I cannot throw up since I had the surgery. Only the dry heaves. I have learned to eat small amounts throughout the day instead of normal meal size and also stay away from high alcohol content drinks or just have a couple sips.
You should definitely have it checked out if you keep getting hoarse. Hoping that things get better for you!
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