So with my recent new diagnosis of a 'lupus-like' disease instead of an 'arthritis-like' disease I guess I feel better that after more than 7 years I've finally found a doctor that is willing to take that extra step and give me an 'almost certain' diagnosis. I have this as well as fibromyalgia.
I have scared myself stupid, as I'm sure a lot of forum residents have, by trying to self-diagnose through the years. Now finally I can narrow this down to try and better understand what's going on with me.
A couple of things I've noticed in addition to the usual symptoms I have (muscle and joint pain, leg weakness, terrible inflammation, pain from my scalp down to my toes, bowel problems, eye problems etc) I have started with nose sores too. I have had probably four in the last two months. These come on without having a cold or flu or anything and last three or four days at least before they go away. The sore will come to a head and I usually have to
squeeze my nose to 'deflate' it and then it starts to go away. I just wondered if anyone else has these nose sores and what they do to treat them/cope with them. If I don't 'deflate' them, then it becomes difficult to breathe through that nostril.
I have also realized I have a strange symptom with my voice too, as I sometimes out of the blue
have problems talking, and my voice sometimes goes away completely. Does anyone else have this? I guess it's another one of those things I will have to learn to live with?
Sue - English transplant living my American Dream.
Living with undiagnosed disease since about
2005. Many symptoms including joint and muscle pain, inflammation and pain everywhere from scalp to ankles.Large intestine not working - removed. Right sided weakness, frequently unable to walk, memory problems, restless legs, body cramps esp in back and legs, eye and facial twitches. Also fibromyalgia.