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Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 12/3/2013 12:25 AM (GMT -6)   
Just letting you know, I am thinking of you tonight, hoping and praying you are having a better night, and able to sleep well.  Thanks for the nice e-mail.
Always hoping the best for you, even on your never ending and most difficult of paths.  Wish I could really do something for you, no one deserves to suffer that much, not fair or just.
Here for you, anytime.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 12/4/2013 11:42 PM (GMT -6)   

My best pain buddy in the world, thanks for thinking of me. I'm going to guess that you were up the other night because you were hurting. (((((gentle hugs)))))) to you, I hate it when I read that you've had a severe pain day.

Unless, a person lives with CP all the time, they do not understand what it does to us. I know I emailed you the photos of my radiation burns on my thumbs. Well, I sent them to my PCM, LOL she replied, "Barbara, your thumbs look so very painful, sorry!". I was thinking gosh doc nothing like stating the obvious.

I drove for the first time since the skin peeled off them. I only went about 4 miles from home. I plan to stick to that as IF I bump them, it makes me cry, that's not a good thing to do while trying to drive a car.

My radiation oncologist prescribed me a cream with silver and a sulphate antibiotic in it to put on all the areas that are bright red. I do that twice a day until I no longer have these really bright red areas. It's a cream meant for 2nd and 3rd degree burns. The only problem is it itches like crazy the first 3 hrs or so.

My pain levels are still very high in my thumbs, feet, back, and lungs. I'm struggling a lot just don't know how or understand why I keep fighting on. Feeling very weary these days, I know it's the pain talking but still............ well you know.

Anyway, just wanted to say thanks for supporting me and being there for me. W/O you and the folks here at HW I sometimes don't think I could pull thru a difficult time.

Hope you have a good night and low pain levels. Will talk with you soon and as always I'm here for you whenever you need me. Your friend in pain.

DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
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