Hi Everyone. I've been having unusual problems for months and finally decided to let you join my pity party. We all have lupus fog which is very frustrating, but my problems have surpassed fog. (Interestingly, I can write better than I can speak.) I now have my adult daughter on my checking account so she can pay my bills, balance, etc. I've been overdrawn way too many times simply because I can't do the math. I have difficulty doing every day tasks. Couple of weeks ago I stood in the kitchen several seconds trying to figure out how to get oatmeal from the container into the pot of boiling water. These things happen often. On a positive note my dermatologist got me in to see her rheumatologist. I really like him. He's intelligent and caring. He wants me to get a functional MRI (the kind that lights up). The waiting list is long, but I've come to terms with this.
Besides my brain issues, I've been so incredibly fatigued for so long that I can barely function. Pain is also a problem. I recently had pneumonia again, this past fall I got influenza even though I had the shot, and I have frequent sinus pain. I had a prednisone taper with the pneumonia which helped, but now at 15mg pred I can't tell that it works at all.
My rheumy ordered many blood tests and found that my IgG was low. He then ordered IgG subgroups and 3 out of 4 were low. I'm now scheduled to see one of the docs who runs an infusion center so I can get IV IG (gamma globulin) infusions. Rheumy says it's often given to lupies with low IgG and most lupies feel better very quickly. IgG works with complement, antigen-antibody reactions, and helps neutralize toxins and viruses. Unfortunately I can't start the infusions until January and I'm so tired of being so tired.
My previous rheumy never ordered IgG levels. I'm trying to be thankful that I have a new rheumy who works hard to find the source of every problem. Thanks for listening. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry