Things Are Not Good

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/8/2013 12:55 AM (GMT -6)   
Hey just wanted to say that I might not be around for a few days. I managed to reply to a few posts, but I'm just about out of steam.

Having severe fatigue, pain, shortness of breath, fever, chills, and just feel like dying. Not sure whats going on with me. I didn't wake up on Saturday until 12:00 now it's almost 2:00am Sunday morning and I feel even worse than I did yesterday.

My thumbs, I thought, were turning the bend but now I know they aren't. I spent almost 1 hours this evening attempting to stop bleeding and the peeling that is happening again. I've been using the prescribed medications the Dr ordered. It just seems whenever I start to "grow" new skin it peels right off. The bones in my thumbs are aching 24/7.

I can't stand on my left foot w/o pain and I have a huge knot on the side of it. Been using my wheelchair to get from one room in the house to another. I'm not due to see my PCM until then 19th of Dec and my Rheumy on the 26th of Dec. I'm dreading Christmas having loads of "family" issues at the moment.

I just really don't know just how much more I can take. Because of my "beliefs" I know there's a better place than here for me. I can't help but want to be there most of the time, the thought of not being "sick" is really appealing.

Hope you all have a good rest of the weekend and a good week. Please send me some positive energy or prayers my way, I need them.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Post Edited (Barbara Lee) : 12/15/2013 12:33:59 AM (GMT-7)


FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 12/8/2013 10:55 AM (GMT -6)   
((((hugs))))
Oh Barbara I am so sorry. I think of you often and keep praying that things will finally start improving for you. I know that you have been having some family issues on top of all the medical problems. The holidays always seem to intensify family issues. You are so strong and have dealt with so much. Know that we are rooting for you and vent anytime!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/8/2013 1:43 PM (GMT -6)   
Sorry to hear you're having a rough go. I'm sending healing thoughts flooding your way.
Feel better soon, friend.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 12/8/2013 2:41 PM (GMT -6)   
Hi Barbara I'm so sorry that you feel so terrible. It sounds like you may have the flu or something that is causing the chills. I am sending you some strength and many prayers. I hope the extra symptoms disappear really soon, and that you feel better really really soon. Take care my friend.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 12/9/2013 8:33 AM (GMT -6)   
Hi Barbara. I don't know if you'll read this, but I hope my prayers and lots of positive energy will help. Love Ya, Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

EnglishSue
Regular Member


Date Joined Nov 2013
Total Posts : 22
   Posted 12/9/2013 2:01 PM (GMT -6)   
Barbara, please take care of you and know that we're all thinking about you. I'm having a rough day too, but NOTHING in comparison to what you're going through. Hang on, take each hour as it comes, you're needed here, so come back when you're feeling better. Sending the best wishes ever.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/9/2013 3:07 PM (GMT -6)   
Hi Barbara,

So sorry things are looking so bleak. I understand how frustrating it must be to watch how slowly things are going with your thumbs, I'm sure they are looking like they are going backwards.

I was thinking earlier today of those tight skin-like wrappings they put on burn victims -- I wonder if maybe your Drs need to consult with the burn ward and see if something like that might help. Seems like they are designed to protect the skin as it slowly grows back in.

I think there is something going around that might explain the fever/chills you've been having. I felt pretty under the weather last week, and I have (otherwise healthy) friends that have been fighting something (bronchial?) for over 2 weeks.

Hang in there, my friend. Try to have a little fun every day, even if it's just the squirrel outside or the way Grady looks at you. Hugs always.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 12/9/2013 6:00 PM (GMT -6)   
Barbara
Sorry you are feeling poorly & having issues w/skin regrowth.
I've also got severe fatigue issues that I am blaming on the weather.

Need to do holiday stuff but no motivation.. pretty much told family "I don't feel good. Love you but please do not expect much from me right now"

Take care of yourself & ask help from those around you when you need it.
Diane

Herniated cervical discs & other disc / spine issues, Arthritis,
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis
Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

LupieICURN
Regular Member


Date Joined Jan 2013
Total Posts : 47
   Posted 12/9/2013 10:32 PM (GMT -6)   
Barbara,
I'm so sorry you're having such a rough time right now. I'm sending lots of prayers and hugs!! Hang in there!!
Nicole- 25, married, no children
Endometriosis, Lupus, Raynaud's, Degenerative Disc, Migraines
Meds- Multivitamin daily, Lo Loestrin Fe daily, Plaquenil daily, Prilosec daily, Lyrica BID, Folic acid daily, MTX injections weekly, Celebrex BID prn, Tylenol prn, Tramadol prn, Dilaudid prn, Zofran prn

~Don't worry about tomorrow, tomorrow will worry about itself. Every day has enough trouble~

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/10/2013 10:00 PM (GMT -6)   
Hi Fran, Joy, Loretta, Donna, EnglishSue, Lynn, Diane, Nicole:

Thanks ladies for your support. I'm just feeling as if I'm drowning in a huge pool of ice cold water and I have no one to help save me. cry

I'm weary, tired, fatigued, sick, and in pain. It seems never ending and I've been fighting so hard for so long. I just don't want to keep fighting anymore. I'm very lonely here at home, with my daughter almost 21 and pretty much out on her own, she really doesn't need me anymore. Hubby, is pretty self sufficient, and the cat I'm not sure how much longer he's going to be alive.

I want to be able to use my thumbs, I'm tired of not being able to grasp anything. The wearing of the bandages is getting old. I noticed that my chest pain started last Friday and it's not getting better but only worse. Bill, mentioned that I should sit back and rest against the couch. I told him "NO" I feel better sitting forward like this. Bill was like great you've got pericarditis don't you? I think I might need a couple of units of blood too. I slept 18 out of the 24 hours yesterday.

I'm having a hard time finding an foot/ankle Dr to look at my feet. The physical therapy place I go to suggested I see a podiatrist. However, I'm worried they are not qualified to handle someone who has RA/Lupus and Leukemia. I realize they do just feet all day long and can recommend the splints and such but......... What do you all think? I know there is something very very wrong in my left foot. That's the one that I ruptured the Achilles Tendon in this past August. I have a cyst or something the size of a grape just below the ankle bone. It's painful to the touch and it moves.

I have severe pain when standing on that foot and if I spend more than 10 minutes walking on it the swelling is really bad. My PT has no idea what it is or whats causing it. I know that the inflammation that I have is causing the chronic tendonitis. You'd think with me on 35mgs of injectable MTX and 20mgs of Prednisone daily that I shouldn't have any inflammation but I sure do. My PCM mentioned that it's possible that I'm no longer responding to any of the therapies. If that's the case I have NO idea what to do, I've tried every drug there is.

I'm guessing that's why I'm feeling so weary and like giving up. If they can't get me feeling any better than I am right now, I just don't know if I can take many more issues with it. I know for sure that right now as I feel, I certainly don't want to live to be old. I'm 48 yrs old and the thought of living like I am right now until I'm 80 isn't appealing at all. nono nono nono nono

We've had bad weather on the east coast, so I'm waiting to get my Dr to contact me, regarding my thumbs. Hopefully, tomorrow I'll be able to talk with them. Well, I guess I'm going to drag myself back to bed. I hope that those of you who aren't doing well start to feel better really soon. For those of you who are doing well I hope that you stay that way. I'll be praying for all of you.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 12/11/2013 12:10 AM (GMT -6)   
So sorry sweetie.

This forum has become a safe haven for me.
We all have different health issues Yet everyone contributes to this on going discussion in their own way
You show me strength & patience - Thank you

So sorry you are continuing to have such a rough time & wish I had some answers for you.

Since developing fibro, it seems to me that the symptoms of every every 'bug' or sniffle feels magnified x10 or 20 or whatever.. example use to be a 24 hr bug meant Feeling ' under the.weather ' for about 24 hr now means I feel really really bad for weeks. Uugghh
So as Lynnwood pointed out maybe you have something going on , like a bug or an infection ; (

Like you & others, My issues seriously impact my every moment -To a point
That like you, I think of doing something to eliminate - that pain.
( Mine sure got old quick..!!)

However, My belief is that this is the 'here & now' & that that this is where I am suppose to be.

If I were to be told I had terminal illness tomorrow I would not just 'give up'..
I remind myself of that fact when I am having these lousy days.
Lousy weeks

Many of us consider you a friend. We care for you.

Prayers & positive thoughts that you get the answers that will help you.
And pain relief I am praying for that pain relief so you can think clearly
Diane
Old enough to be a great grandma !
Herniated cervical discs & other disc / spine issues, Arthritis,
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis
Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/11/2013 12:15 AM (GMT -6)   
((((((((((Gentle hugs))))))))
Sounds like you're having a very rough time.
I would go see a podiatrist about your foot.
I know you're having a lot of pain and frustrations with all your stressors. This doesn't help your condition either.
You need something to focus on to get your mind off your misery. What do you think about getting a new kitten?
When I realized that my poodle was dying I adopted a new kitten. It helped ease the transition of losing him. I still morned him but having the kitten gave me something to lean on for extra support. Besides who can cry if they are watching a sweet kitty play or giving you extra cuddles?

Hang in there, honey. I wish I could bundle you up and take you home with me.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

EnglishSue
Regular Member


Date Joined Nov 2013
Total Posts : 22
   Posted 12/11/2013 10:36 AM (GMT -6)   
Barbara, do you have a health advocate with your health insurance? I am fortunate my company offers someone that can talk to the insurance companies or doctors for me, if things get too much, which they have in the past for me. Sometimes I don't have the strength to fight with anyone anymore even though in my head I'm mad as hell and screaming for someone to take notice! Can you contact your local health dept in your City/town or someone who offers social services of some kind to help you out? I know it's very hard to go through all this crap when you're weak, try and see if there is someone who can fight for you, so you can save your strength and feel better. Sending you positive thoughts and hope. P.S. I like the idea of the new kitten...
Sue - English transplant living my American Dream.
Living with undiagnosed disease since about 2005. Many symptoms including joint and muscle pain, inflammation and pain everywhere from scalp to ankles.Large intestine not working - removed. Right sided weakness, frequently unable to walk, memory problems, restless legs, body cramps esp in back and legs, eye and facial twitches. Also fibromyalgia.

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4483
   Posted 12/11/2013 8:45 PM (GMT -6)   
Barbara, I'm really sorry for all your pain and everything you're going through.

You're not drowning. We are here for you.

If you're unable to find a doctor to see about your foot, maybe you should visit the podiatris and hear what they have to say. Maybe they will be able to help. If after hearing them you don't think so, then we'll keep looking for another doctor. I do hope you'll find a doc to see about it.

Hang in there Barbs. I hope you'll get some pain relief soon. Keeping you in my prayers and thoughts. Please take care of yourself.

UA
Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/15/2013 1:45 AM (GMT -6)   
Hi Diane, Joy, Sue, and UA:

Thanks you for your support, sometimes I feel like I'm fighting this battle all alone. I'm still feeling really rotten, found out I do have fluid around my heart. Not enough to have to drain it yet, but more than I normally have.

The Dr upped my pred by 5mgs more and suggested I rest a lot this weekend. Of course, here it is almost 2:45 in the morning on the East Coast and I'm not sleeping or resting.

My back is tight as a knot and my foot is killing me. Let alone, I hate sleeping in the chair. My cardiologist again offered to prescribe a hospital bed for me, but I'm just NOT ready to move into one in my living room. nono nono nono Told him I've been laying in the same bed with Bill for almost 29 years now, I'm not ready to leave his side yet.

I'm also driving myself nuts, because I've somehow managed to place my Visa Gift Card for $100 somewhere safe. Where that safe place is I have no clue. I'm to sick to tear the house apart at the moment, so I feel as if I'm losing my ever loving mind over this. Any suggestions of good hiding places would be most helpful.

I have an appointment to see the foot Dr on Friday. I desperately need a massage and my therapist can't see me till the 27th of December. Guess I'll make an appointment somewhere else, I'm hurting way to bad. Grady (the cat) is eating a bit better today. I'm worrying over him day and night, it's just so hard to judge things with him.

Yesterday, Bill put bird food out and some went onto the patio. Well, the birds and squirrels come onto the patio and eat the stuff. Grady was sitting at the patio doors chattering away at them and chasing them back and forth in front of the glass doors for over an hour. How can I put him down when he's acting like he feels fine? I can't, so I guess we'll continue on until...... I'd love to get a kitten, however, Grady doesn't like any other animals in the house. I'm not willing to upset him for a kitten. Maybe when he's passed away I'll get one or two. (Bill might protest a bit, but my bet is on two) shocked

Okay, I'm going to go and try to sleep, thanks for listening and being there for me. I appreciate everyone for you loving support. I hope you are all having a good weekend and low pain levels. Will give another update when I can.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/15/2013 1:31 PM (GMT -6)   
I can picture your cat at the door being a little silly. :-))
I'm glad you're getting your foot checked out. I hope the doctor can get it feeling better. I hope the fluid dries up quick on your heart. I know that must feel frustrating.

Maybe you can get a nice elevator for your bed? I sleep on one when my asthma is pestering me.
As for the missing visa card.....I would look in a container on the dresser where I keep my bills.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 12/15/2013 9:18 PM (GMT -6)   
 
Hi Barbara,
 
     Your cat story reminded me of my three.  They lived to be quite old and it was so difficult to put them down.  What I paid attention to were the messages they were sending me.  Even my 18 year old would suddenly get very kitten-like and frisky.  One day she just let me know.  She had not eaten in four days and was not drinking any water, nor leaving her cozy cat bed.  She just looked at me with these mournful eyes and I knew.  Your cat-companion will let you know when it's time.  I am sending you a warm, gentle ((((((((((((((((((((hug))))))))))))))))))).
 
Love,
Laura

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 12/15/2013 10:18 PM (GMT -6)   
Barbara

Hope you get.massage.soon - Oh I would love.to have one myself !!

I too have had to take my furbabies to vet when it was their time.. and yes, they let me know ..
Always glad to know they had still had fun moments even when I knew they were about ready to move on.

Sounds like someday a couple of kittens will have a new home.. nothing is cuter!!
personally I usually brought 2 animals into my home together if there was no other ones already here.. so they would not be alone.

Visa card hhmm.. been there / done that .. could be anywhere.. good luck !!
Mine ended up being tucked in my purse, right where I put it when I bought it.. now I have all my gift cards together in one spot - hhmm reminds me I have several I should use to buy gifts ASAP.

I don't have many people to buy for but I sure need to get them something !!

Last nite was one of those nites for me.. got fibro flare big time.. feels like my skeleton is vibrating nonstop. Laid in bed for hours this A M thinking those dark thought we sometimes get.. somewhere in there I always feel some self pity as I have been alone - boyfriend-less. ; ). For so very long.

I start thinking about proposals I turned down, realize what good decisions those were & get right up !!

As true as that is it changes nothing - I still hurt, I am still alone & neither of those things is going to change. Gets to me, but I intend to keep going. HW folks help me keep on track when I have these moments.

Take care - keep us updated - holler when you need to. Enjoy every moment you can:grab each one & keep it.

Prayers
Diane
Old enough to be a great grandma !
Herniated cervical discs & other disc / spine issues, Arthritis,
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis
Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4483
   Posted 12/16/2013 11:17 AM (GMT -6)   
Hey Barbara,

Thank you for the update. I hope the increase in med will help you.

Have you ever tried raising your bed. Maybe either the head part of foot part? Not sure if this will help you.

It sucks when we hide something in a safe place and we can't find it. This happened to me many times. One time I lost $500. It was starting at me all along. My mother found it under a book right by my bed foot a fer weeks after. Maybe you can try checking in a place you don't think it would be. I hope you'll find it.

I hope you will get through with a massage soon. Let us know how your app on Fri goes.

Take Care and I hope you'll get some pain relief and feel better.

UA
Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/17/2013 8:44 PM (GMT -6)   
Hi Joy, Laura, Diane, and UA:

Thanks for your support. I'm really struggling here and I'm not sure what to do with myself I feel so bad. I went yesterday to get my massage and it ended up being a TOTAL BUST.

I filled out the paperwork that is required, well there's a question about having cancer. So, of course, I answered yes that I have leukemia. Well the receptionist took the paperwork back to the therapist. about 5 minutes later they both come out and say, "I'm so sorry, but I can't give you a massage without a letter from your Dr. Plus after you get the letter you'll need to to sign a release form regarding your cancer,"

What the heck, I mean I'm suffering in so much pain I can barely stand up straight, and you want me to get a Dr's letter, talking about my leukemia. I swear everyone is so scared of getting sued these days. It's not like the massage is going to do anything to my leukemia. I've been getting massages since 1988.

So here I sit with my pain levels thru the roof. My left foot is hurting so badly and when Matt worked on it at PT today, he was like you're getting worse. I was like, yep, I know. Friday won't be here soon enough for me. I sure hope the Dr has some much needed answers and treatment for it.

Here it's the week before Christmas and I'm just stuffing envelopes with cards. I'm not able to sign them, and Bill didn't want to write anything in them. So most folks are just getting a plain card. Good thing I special order my cards with our family names printed in them, at least people will know who it's from. There's isn't one decoration put up and there is NO WAY I can do it.

My breathing is much worse, I've added an additional two pillows under me at night. I somehow have this picture in my mind that next week I'll be hanging out in the hospital instead of at home. I'm sick of this I just want to be well or be out of here. Currently I look like I've got a major sun burn going on. Every night I seem to get these really red cheeks. There are really hot and I'm talking fire engine red. Any ideas why I've got this going on now.

I do have one good piece of news in my dark world. My right thumb has started to grow skin back. yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah I no longer need to put the cream with the silver and antibiotic in it onto the thumb. I'm even down to just wearing a large (LARGE) band aid on that thumb. My left thumb isn't doing as well though. However, the left thumb has had radiation twice and the warts were much worse on that one. I'm not going out on a limb yet stating that the warts are gone on the right thumb. It looks promising though, lets pray they stay away forever.

Well, I'm headed off to bed. I hope you are all doing fine and having much less pain than I am. Sleep well, and enjoy your day tomorrow. Will stop by tomorrow sometime, I only see my shrink at 2:00 tomorrow.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/17/2013 10:35 PM (GMT -6)   
Hugs, Barbara!

So glad some skin is starting to stick to your thumb, I sure hope the other one will be close behind. I hope you get a really good nights sleep for a change and are feeling better so you can get to the shrink. Peaceful dreams!

xxoo
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/17/2013 10:36 PM (GMT -6)   
That stinks that they won't let you have a massage.
Sorry you can't get the decorations up. My father had to be practically whipped by my mother to set up the decorations this year. He has to help get the boxes down from storage, reach the high spots, and hang lights outside. Men.....

Good idea on the pre-labeled cards. I plan to do that one day.

I hope you don't have to be back in the hospital anytime soon. What does the doctor say about your breathing?

I'm glad your thumb is finally healing up.

Myself, I'm suffering with a sore shoulder and ribs. Both located on the right side and I didn't hurt them either. Just a weird flare I guess.

Feel better soon.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 12/18/2013 7:35 PM (GMT -6)   
Hey hon

Good to see your update..& glad your thumb has healed some.

Sorry that your massage did not happen !!! Folks are covering their behinds.. I would so love one myself ..

Re: holidays

Just to let you know that you are not alone -
And I do not have cancer nor some of your other issues -I just feel super tired & low low energy (& cranky)

Last year I think I spent parts of 2 months signing/ stuffing Christmas card envelopes.
Those are still in the box with either the decorations or gift wrap - never mailed -
Those boxes are in the attic..

no gifts ordered or purchased - fridge is pretty empty too - pb on crackers for dinner again.

Belive I am going to end up asking family members to shop for me so noone is disappointed on 'the day'

Smile hun.. family is gonna.love us no matter what we do or don't do -
Remember that !! Ask others if you want something done.
Diane
Old enough to be a great grandma !
Herniated cervical discs & other disc / spine issues, Arthritis,
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis
Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 448
   Posted 12/19/2013 4:56 AM (GMT -6)   
Thinking of you Barbara & praying your appt goes well today with your PCM. Hope he/she can do something to give you some relief. Also, praying your appt with the podirtrist on Friday goes well and you find the answers you're looking for for your foot and ankle.

Gentle Hugs

Melissa


Mother of 2 beautiful adult children and one amazing daughter in law, lupus SLE since 1997, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus SLE while in college. I take a slew of meds to many to mention, am on Benlysta infusions. I try to live each day with a positive outlook and count my blessings.

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4483
   Posted 12/19/2013 7:23 PM (GMT -6)   
Hey Barbara,

Thanks for updating us.

I'm sorry to hear what happened when you went to get your massage. It really sucks that they didn't give it to you after all you've been through.

I've with you and Diane on the holidays. Not feeling it here either. I only bought a gift for my niece and nephew. Did not do any major shopping and not planning to do any.

I'm glad to hear the good news about your thumb. I hope the left one will come along too.

Let us know how the app goes. Hope you can get some pain relief and rest and your breathing will improve. We're always here for you.

Take Care Barbara

UA
Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.
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