Negative ANA after lupus diagnosis?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LupieICURN
Regular Member


Date Joined Jan 2013
Total Posts : 47
   Posted 12/11/2013 2:54 PM (GMT -6)   
So as if I wasn't confused enough before, the new rheumy I went to the other day just called me. She said that all of my labs look pretty normal and that my ANA is now negative. Could it be negative because of all the meds I'm on? I'm so confused.. I'm beginning to think I may have a wrong diagnosis. All of my symptoms definitely point towards lupus but my sed rate is always normal, I'm not getting much relief from any of these drugs.. I just want to give up. I'm so beyond frustrated at this point, I just want to hide in my house and never see the light of day again. And I can't get in to see my other rheumy until the 20th. No wonder I could give a crap less about Christmas right now. I just don't know how you all keep going and fight through every battle. I'm just done. I don't want to do this anymore.
Nicole- 25, married, no children
Endometriosis, Lupus, Raynaud's, Degenerative Disc, Migraines
Meds- Multivitamin daily, Lo Loestrin Fe daily, Plaquenil daily, Prilosec daily, Lyrica BID, Folic acid daily, MTX injections weekly, Celebrex BID prn, Tylenol prn, Tramadol prn, Dilaudid prn, Zofran prn

~Don't worry about tomorrow, tomorrow will worry about itself. Every day has enough trouble~

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/11/2013 5:23 PM (GMT -6)   
If I understand it right, ANA levels can change and change patterns too.
Maybe they haven't found the right medicine combination?

My SED rises and falls too.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

MrsMitchell
New Member


Date Joined Dec 2013
Total Posts : 2
   Posted 12/11/2013 5:46 PM (GMT -6)   
I can totally relate. Diagnosed with SLE over 3 years ago. I have never had a positive ANA or any other test. Little to no relief from Plaquenil. Prednisone helps as do narcotics. But I can't survive on them. Having a very hard time finding a rheum that will accept my insurance and PCP wont prescribe anymore Plaquenil. They just say go to ER. Then to top it off they just dx'd me with Young Parkinson's. But, from what I've been told and read, only 60% of people withe SLE have any positive labs. I don't get it. I have about 11 out of 14the criteria for SLE and have had 4 different opinions. rolleyes

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/11/2013 8:32 PM (GMT -6)   
Welcome, MrsMitchell.
YP? Is that the kind Michael J. Fox has?
That stinks that you can't get a consistent answer.

Make sure to write an introduction thread.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

MrsMitchell
New Member


Date Joined Dec 2013
Total Posts : 2
   Posted 12/11/2013 8:58 PM (GMT -6)   
Thank you. Yes, it's the same. And let me clarify. All 4I opinions were the same...SLE.
Marian
44 y/o
SLE, YP, IBS, Bi-polar asthma, I pray that's all.

Today is the first day of the rest of your life.

LupieICURN
Regular Member


Date Joined Jan 2013
Total Posts : 47
   Posted 12/12/2013 4:05 PM (GMT -6)   
Welcome Mrs. Mitchell!
I'm glad (but not glad for your sake) that there's someone out there that can understand what its like to be tossed from one doc to the next. I'm sorry about the diagnosis of YP. If you've had 4 different docs all agree its SLE why don't any of them step up and help you? So frustrating! Hope you find support here.. there are some wonderful people on here who have been through it all and can help you understand sometimes.
Nicole- 25, married, no children
Endometriosis, Lupus, Raynaud's, Degenerative Disc, Migraines
Meds- Multivitamin daily, Lo Loestrin Fe daily, Plaquenil daily, Prilosec daily, Lyrica BID, Folic acid daily, MTX injections weekly, Celebrex BID prn, Tylenol prn, Tramadol prn, Dilaudid prn, Zofran prn

~Don't worry about tomorrow, tomorrow will worry about itself. Every day has enough trouble~
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 8:36 PM (GMT -6)
There are a total of 2,974,858 posts in 326,216 threads.
View Active Threads


Who's Online
This forum has 161309 registered members. Please welcome our newest member, Steel and fire.
439 Guest(s), 10 Registered Member(s) are currently online.  Details
McKinley, ezhoe, Kent M., mudshark, GNYC, enjoygolf, ChickenArise, Octorobo, straydog, BOB 46