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Purple Tulip
Veteran Member

Date Joined Aug 2006
Total Posts : 1301
   Posted 12/15/2013 5:19 PM (GMT -6)   
Greetings everyone.  I am Purple Tulip.  I am not new to Healingwell.  I am a veteran member and a few years ago a frequent contributor to the Lyme forum.  I have been reading your posts and decided to introduce myself. 
I have not had an official Lupus diagnosis, since getting into a Rheumatologist is taking me months! But my DO who has treated my Lyme for years tells me my symptoms are accelerating,  can not give me an official diagnosis, but in the meantime is giving me all the support he can. 
Anyone else have Lyme as well?

Forum Moderator

Date Joined May 2005
Total Posts : 7672
   Posted 12/15/2013 9:42 PM (GMT -6)   
Welcome -

We have a couple of new members visiting from the Lyme forum, but I don't know of anyone that has been officially diagnosed with both diseases.

I hope you can see a rheumy soon - one way to find a Lupus knowledgeable one is to visit, find your local chapter, then contact them to see what Drs in the area participate on their advisory board. Those are the rheumies that are most interested in Lupus & best able to diagnosis & treat it.

Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Purple Tulip
Veteran Member

Date Joined Aug 2006
Total Posts : 1301
   Posted 12/16/2013 9:53 PM (GMT -6)   
Thank you Lynnwood! I really appreciate your response. I was hoping someone was going to share.  I was beginning to think that the Lyme thing kept people from interacting. Thank you.
I have symptoms that are not anything like what I experienced with Lyme. I have a positive ANA (no titers, my lab doesn't to them) and have had the butterfly rash on my face.  For some time now I have had kidney pain (blood protein and bilirubin have been detected in my urine)  and I now have a strange kind of pain in my abdomen from time to time. It doesn't seem to be food related since its sometimes there when I wake up or late afternoon.   I am also having some cardiac issues that resemble what I experienced when I was extremely ill with Lyme.  Any advice on any of these would be helpful.
Also I have read most of what is suggested here.  I am in need of more practical advice than anything else.
Thank you for any advice or support.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 12/16/2013 10:44 PM (GMT -6)   
Are you being careful about sunlight and fluorescent lights?
It's important to protect yourself from it. My rash gets worse and I feel sicker when I'm exposed to it.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Purple Tulip
Veteran Member

Date Joined Aug 2006
Total Posts : 1301
   Posted 12/16/2013 11:15 PM (GMT -6)   
So far the only problem I've had with this is the afternoon sun in my office seems to really bother my eyes. Thanks for the advice.
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