Lupus and erruptive dermatafibromas

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C/Z Fan
New Member


Date Joined Apr 2011
Total Posts : 19
   Posted 12/17/2013 7:48 PM (GMT -6)   
Hi Everyone,
I've had a lupus for over 24 years now and aside from a few really bad flares, it's been well controlled with plaquenil, and adjusting my lifestyle to be more healthy. In the last seven months I have been diagnosed with multiple erruptive dermatafibromas which are basically small, benign bumps on my legs, arms, torso and even 2 on my face. I had 20 in April and in 4 mos I got another 20. I'm told that having more than 1-5 is unusual. I've also recently been diagnosed with thyroid disease. Since regulating that my thyroid, I have not noticed any new bumps. Docs discount that it is thyroid related. Anyone else out there with any experience with these buggers?
Thanks!
Laura

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7724
   Posted 12/17/2013 8:27 PM (GMT -6)   
I don't recall anyone here having mentioned that, but hopefully someone will come along who can share some experiences with you.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/17/2013 9:10 PM (GMT -6)   
What do they look like exactly?
I have constant bumps on my chin and scatter all over my scalp. They usually have a tiny bit of white pus in them. Nothing seems to get rid of them.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

C/Z Fan
New Member


Date Joined Apr 2011
Total Posts : 19
   Posted 12/17/2013 9:16 PM (GMT -6)   
Mine are very hard, raised bumps about the size of a chick pea or smaller. Some have a dimple in them and are dark in color. They seem to get a little flatter as the months go on.

jennmem
New Member


Date Joined Sep 2014
Total Posts : 5
   Posted 9/22/2014 10:43 PM (GMT -6)   
Yes!  I have had lupus for about 15 years, and I just found out that I am hypothyroid and probably have been for a while.  I am also being screened for thyroid cancer.  Went to the dermatologist today, and she removed what she thinks is a dermatafibroma to send off to pathology.  I have gotten 10 in the last year.  I have read a lot about lupus being the connection to people who get a lot of these in a short amount of time.  I also just read a study about the possible link to breast cancer and arsenic poisoning.  They say that people who are immune compromised, have certain kinds of cancers, and who have autoimmune diseases (especially lupus) are in that group as well.  The theory is that it's an immune mediated process.  So I guess if you have the autoimmune version of thyrdoiditis (Hashimoto's) or you have thyroid cancer, it wouldn't be far fetched to think that it could cause them.

C/Z Fan
New Member


Date Joined Apr 2011
Total Posts : 19
   Posted Yesterday 4:30 PM (GMT -6)   
Thanks for your reply! I suggested to all the docs who saw me during that time that the thyroid issue could have caused them but they didn't agree. Funny thing now is that I've been on thyroid meds steadily and I haven't gotten any new ones. The ones I do have are flattening out a bit more each month. I don't think they will completely disappear but they aren't as ugly or prominent. I also hope they won't start again.

I hope your pathology is clear and that you get your bumps under control too.

Laura

jennmem
New Member


Date Joined Sep 2014
Total Posts : 5
   Posted Yesterday 6:58 PM (GMT -6)   
There is so much mainstream medicine does not understand about thyroid disease. Every book I read about it surprises me more and more. It is definitely a disease you have to do your own research on. I have learned to be my own advocator. I am so glad that you are seeing improvement with the thyroid meds. I won't be able to start treatment until I am the neck surgeon rules out thyroid cancer. Then I will have to get a good endocrinologist and make sure my adrenal gland is good to go before we can start treatment for the thyroid. Doesn't seem like there is a quick fix for this. I hope I get as good of results as you!

Thanks!

Jennifer

C/Z Fan
New Member


Date Joined Apr 2011
Total Posts : 19
   Posted Yesterday 8:03 PM (GMT -6)   
Hi Jennifer,
I've had lupus for 25 years and I've found that it's really important to take part in treating my symptoms. Sometimes docs want to be too aggressive if they don't know you well. With my last flair that was caused by a kidney infection and then further complicated by an allergy to ciporo, a substitute doc wanted to put me on 60 mg of prednisone. I didn't do it. I went up to 20 and it worked. My doc agreed with me but then again she knows me better than the other doc.

Hang in there with your diagnosis and treatment. How come it's taking so long to diagnose? It seems like I went right on synthroid and then we also did a sonogram of my thyroid. I hope they move it along so you can feel better.
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