I hope everyone is having a good evening. I have been on here off and on, while my doctors searched for a cause for my symptoms. I saw my rheumy again today and she said I have a "lupus-like inflammatory disease" but my blood work is non-confirmatory for lupus. She is treating me with plaquinel (spelling?) after I meet with my eye doctor to discuss it. Since my blood work is normal she is not comfortable giving me steroids, so we are using NSAIDs on a regular schedule. and then using cold weather avoidance/protection for my newest issue- Raynauds.
Has anyone else been told they have a "lupus-like" disease, but not lupus? Did plaquinel help? I know its slow acting, but I am hopeful for some relief within a few months.
Thanks for reading,