Lupus without symptoms

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Anirock
Regular Member


Date Joined Dec 2013
Total Posts : 28
   Posted 12/19/2013 3:42 PM (GMT -6)   
Hi!
3 years ago a nurse friend made me a full set of blood tests and she told me that I'm suspect of LES. I went to another lab to make again the test and they were negative. (I mean ANA and anti-DNA ds). A month ago my old friend repeat my blood test and she told me they are very very high now so I went to a doctor who made me a lot of tests and he told me that my DNA test is very high and ANA is positive but because I don't show any kind of symptoms and he couldn't give me any medication(he explained to me that he treats symptoms not blood tests). He told me to pay attention to any kind of possible symptoms and if there is something to come back. I don't know what to do... just waiting the disease to come.... it's terrific. I'm from Europe but now I'm leaving in Texas. I saw a doctor in my country and now I'm thinking to see one in Texas. I spent a lot of money for this test. what do you think? is better to wait the lupus and in the rest of time just to be watchful ? or is better to see another doctor?

Purple Tulip
Veteran Member


Date Joined Aug 2006
Total Posts : 1301
   Posted 12/19/2013 4:29 PM (GMT -6)   
If you have no symptoms, why did your friend suggest you take an ANA test?

Anirock
Regular Member


Date Joined Dec 2013
Total Posts : 28
   Posted 12/19/2013 5:14 PM (GMT -6)   
She didn't suggest me to do that. She only did for me every blood tests because she owns a medical lab. And after she saw my tests asked me to do other medical investigation. I did so and a rheumatologist confirmed me all the tests. but as I said without evident symptoms he refused to prescribe me something. he recommended me to pay attention to that.
my blood tests are:
ANA- positive
AC anti DNA 622 (normally <200)
c Anca, pAnca, ac anti Ro - all of them positive

I point out that I have vitiligo and autoimmune thyroid.

Purple Tulip
Veteran Member


Date Joined Aug 2006
Total Posts : 1301
   Posted 12/19/2013 5:42 PM (GMT -6)   
I am glad you are not suffering. Maybe with no symptoms the Rheumatologist thinks it best not to medicate.

Anirock
Regular Member


Date Joined Dec 2013
Total Posts : 28
   Posted 12/20/2013 4:35 PM (GMT -6)   
what you recommend me ? do you think that I can try to have a baby ? I mean, is that a big risk to start the disease ? I point out that I am 29 and I want so much to have one. I asked the doctor about that and he told me that it's ok to get pregnant but I need strict medical care. i'm scared for my child not to get sick too :(

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/22/2013 11:37 PM (GMT -6)   
I've had lupus for 26 years now and I would say as long as you have no symptoms I'd try not to worry about the positive labs so much. The reason is lupus CAN NOT be confirmed just from blood tests. There isn't a blood test to prove or disprove that you have lupus.

Most Rheumy's go by the symptoms that you're having and look at your blood work. I know my daughter who is almost 21 have had a positive ANA since she was 7. She also now has several other of the labs positive, but other than some pain from time to time, she's symptoms free. Therefore, her Dr and my Rheumy, (he's examined her twice) has said that she doesn't need to be on anything.

As for having a baby, it may or may not cause you to show the disease. You're in a tough spot cause you're really not sure if you have it. There is no way of knowing whether you'll pass the disease on to your baby. It's a matter of personal choice between you and your partner. I didn't have a firm DX of lupus until my daughter was 8 yrs old. Would it have changed my decision to have her, probably not.

Do I feel bad and worry about her getting lupus, yep. However, I'm not in control of her fate in life and what's meant to be will be. I hope that you do not develop lupus ever and can start family as you have planned.

Wishing you the best and I hope that you continue to do well.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Anirock
Regular Member


Date Joined Dec 2013
Total Posts : 28
   Posted 12/23/2013 4:33 AM (GMT -6)   
Thank you so much for your reply Barbara. It meant a lot for me, especially because I didn't think even a second that my child can have this disease. All the time I thought only not to trigger Lupus...
I'm so sorry that you are in so pain :( and I wish the best for you and your daughter, never Lupus gets her in his claws :). I think you are a fighter and your daughter is happy having you. It's very important to have an optimistic person near you in this situation. I'm suspected of Lupus but I didn't say that to my mother and I'm not going to say her until it gets worst because she is the kind of person who buries me before to die.
I need to stay optimistic as long as I can and to live my life as normally as the disease allows me :)

Merry Christmas!
Corina
Vitiligo, Autoimmune thyroid, maybe Lupus ( the doctors haven't decided yet).

“In three words I can sum up everything I've learned about life: it goes on.” ? Robert Frost

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/23/2013 8:55 AM (GMT -6)   
Just a note to add that although passing on the disease may be a worry, there is so far NO PHYSICAL EVIDENCE indicating Lupus is hereditary. There are a lot of people who think it might be, as sometimes it looks like it runs in families -- but thinking it so isn't proof.

I'm like you originally, Anirock, I would be more concerned about triggering my own lupus. I've read that they treat it like a high-risk pregnancy to make sure you are watched careful and problems are avoided. In some people, it has prompted a long-term lupus remission. And of course, there are others where it has made Lupus flare.

Hard decisions, and unfortunately no solid medical evidence to support either choice. Best wishes.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Anirock
Regular Member


Date Joined Dec 2013
Total Posts : 28
   Posted 12/23/2013 9:27 AM (GMT -6)   
Yes, I know it is a hard decision because I have other problems too. I have ovarian cysts and so far I kept my ovaries clean using birth control but now my rheumatologist forbade me to taken them anymore. So, my ovaries will get full of cysts again and this is a big problem for fertility this is why I need to do something this year. I'm 29 and I want a baby :(. I regret that I waited so much to take this decision, but you know always I thought ..."It's not the time, I need a perfect time to conceive a child :(" More than that my husband doesn't agree to threaten my life to have a child. I'm so confused :(.
Vitiligo, Autoimmune thyroid, maybe Lupus ( the doctors haven't decided yet).

“In three words I can sum up everything I've learned about life: it goes on.” ? Robert Frost
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