Just trying to catch up on posting as I've been AOL for a day or so. I'm sorry that I haven't been around but like I mentioned in my other post I'm not doing well.
First off, can you believe it two days before Christmas and I'm sick as a dog. I saw my PCM on Thursday and was okay (other than my foot and back). By Friday night my chest was burning, and I had body aches. Decided not to take my MTX injection that night.
Saturday I noticed I felt worse, so no shot that night either. The cough and wheezing started Saturday night around 9pm. Well, by Sunday morning I sound really bad, coughing up junk from the lungs, and I'm gonna guess I've got pneumonia. I'm the pneumonia queen out there, I'm hoping not cause my last case nearly killed me.
It's now going on 12:45 am Monday morning my temp is 101.7 and I'm barking like a seal when I cough. I've already sent an email to my Dr. Hoping she'll call me first thing this morning. I really don't want to go into the ER as I know they will admit me and I'll spend Christmas in the hospital. If I worsen, of course, I'll go to the ER. Like I said my last case of pneumonia I spent 4 days on life support before I was well enough to breathe on my own.
As for my foot appointment what a crock of crap. This Dr was such a loser, and I'm going to let the PT office that I go to know how unhappy I was with the appointment. They recommended this guy and he only offered things that are not covered by medicare or tricare for life. He told me that I needed to have an open mind to what he was going to suggest to help me.
He wants me to try Diowave Laser Therapy, which he didn't tell me how much it's going to cost me. He also want me to try Platelet-Rich Plasma Therapy at $700 a treatment for both feet. He feels that I most likely will need at least 5 treatments per foot. The lump is a calcification in my foot that is irritating my tendon. He did not offer a treatment plan for that.
He then offered me a set of splints that Medicare does cover, but once I get them on I can get my feet into shoes. I need to purchase new shoes and I couldn't leave the office w/o buying the splints. He then offered me a different splint, but low and behold they are not covered and cost $120 for the pair. I found them on E-bay for $60.
He did say that as a last resort he could fit me for custom made splints and those would be covered by medicare. I've sent an email to my Dr, he did say that he'd need a letter from both my PCM and my oncologist approving the Platelet-Rich Plasma Therapy.
He would be required to remove blood from me, mix it with some special chemicals in a tube, and then inject it directly into my tendon. He said straight down the back of the tendon. Of course, anyone who is on blood thinners, has anemia, and bleeding disorders may be at a very high risk. I've got all three of these problems, that's why he wants my Dr to okay everything.
I guess I'm going to have to either wait (in pain) until I can see the foot and ankle doc at the military hospital late January, or start looking for another Doctor. I'm not sure what I'm going to do. All I know is I can barely walk on my foot and my pain is a constant 7 to 8 24/7. I feel like total CRAP at the moment and I'm just wanting to crawl under a rock and die.
Well, I'm going to go back to bed and try to sleep. Not sure I'll be able to breathe with my VPAP running and my being so stuffy. I want to wish each and everyone one of you a VERY MERRY CHRISTMAS. Just in case I end up in the hospital and can't stop by before then.
Take care and I hope you all get a good nights sleep.
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.