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GenaF.
New Member


Date Joined Dec 2013
Total Posts : 1
   Posted 12/29/2013 10:51 PM (GMT -6)   
Well I have had a positive RNP in 2010 I have always since my childhood remember growing up with the pain. So I have many issues that could all be related to one thing. I was taken off prednisone and put on plaqunil with in 1 month of starting I was in sever pain and had to go back on higher dose of prednisone. I was looking to see if there is anything else like ivig that people tried & if insurance paid for it. I also have had a PE in 2000. I'm on Coumadin forever so I'm limited as to what I can take.
I was also told to look into taking a herbal MSM? Anyone heard of that?
Does anyone have any suggestions for me.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/30/2013 3:19 AM (GMT -6)   
I'm new to the drugs of lupus but I'm sure someone will be on here soon to answer your questions.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/30/2013 2:53 PM (GMT -6)   
I don't know what a "herbal MSM" is. Plaquenil is the medication used to help inhibit Lupus, Prednisone is one of the steroidal anti-inflammatory meds used to decrease inflammation (& this pain).

Do you see a rheumotologist? Have you been diagnosed with Lupus?

I don't recall seeing anyone restricted to a subset of the normal Lupus meds (plaquenil, prednisone, cellcept, imuran, mtx) because of coumadin -- however if you are going to try non-traditional medicine be sure to consult your coumadin prescriber to make sure you don't end up in trouble.

With more information perhaps we can generate more suggestions.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 12/30/2013 10:39 PM (GMT -6)   
Herbal MSM is another unproven treatment. More like old fashioned snake oil since it has been recommended for lots of diseases and conditions with no proof it is effective.

http://www.webmd.com/vitamins-supplements/ingredientmono-522-MSM%20(METHYLSULFONYLMETHANE).aspx?activeIngredientId=522&activeIngredientName=MSM%20(METHYLSULFONYLMETHANE)

Personally, I would be leery of anything like this because there are no standards or controls over what it contains. If you have MCTD traditional meds usually work although all have side effects ranging from minor nuisances to really serious. However, I would take them to control the disease knowing how powerful and complicated and life threatening MCTD can be in some cases like mine.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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