Can Lupus be manageable?

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diznyfrk
Regular Member


Date Joined Aug 2013
Total Posts : 298
   Posted 1/1/2014 5:56 AM (GMT -6)   
I have not been diagnosed yet so I may be jumping the gun. I do have a rheumy appt in February. What I would like to know is if Lupus can be manageable? From what I have always heard, it is a horrible disease and can be life threatening. I understand from reading posts here that it can affect some people worse than others. But, on the average, can it be controlled with proper medication? I already have RA, Sjogrens and Fibro but all of these together don't frighten me as much as the possibility of Lupus. I am hoping to find out if I have it or not soon. Thanks in advance for any information.
Sharon


Rheumatoid Arthritis, Sjogrens, Fibromyalgia, Chiari 1 Malformation, Osteoarthritis of the hip and neck, Heart Murmur, Acid reflux/gerd.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 1/1/2014 9:52 AM (GMT -6)   
It's really a random disease, like many others. For some, it can be controlled or even go into a kind of remission. For others, it can run rampant and cause serious damage to organs, et.al. It just really depends on what kind you have and how your body reacts to Lupus and to the various treatments.

Try to stay in the present day and not waste your energy worrying about it. You will know soon enough and then you will take the appropriate action.

Cheers,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

diznyfrk
Regular Member


Date Joined Aug 2013
Total Posts : 298
   Posted 1/1/2014 10:45 AM (GMT -6)   
Thanks Lynnwood. I know I am probably worrying for nothing but my gut tells me it is something. I have learned over the years to go with my gut. Anyway, if I ask my rheumy to test me for Lupus, is that sufficient or should I ask for more specific tests?
Sharon


Rheumatoid Arthritis, Sjogrens, Fibromyalgia, Chiari 1 Malformation, Osteoarthritis of the hip and neck, Heart Murmur, Acid reflux/gerd.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 1/10/2014 10:28 PM (GMT -6)   
Most doctors will diagnose lupus on the basis of clinical symptoms and labs. Often the diagnosis is not clear but if you truly have lupus eventually it will be confirmed in both symptoms and labs. Your rheumy will know what tests to do. Typically cbc, cmp, sed rate (esr), and possibly a lupus panel. Other tests like ultrasound to see if there is any organ involvement can also be ordered if that is suspected.

http://www.lupus.org/answers/entry/common-symptoms-of-lupus

As for treatment, lupus is usually treatable but some cases are more severe and others just stubborn and chronic. Many patients go through various meds/treatments to find what works for them and carry on a normal life. Others have a problem finding the right treatment for them. Lupus is no different than other autoimmune diseases in these respects.

Remain optimistic and take things a day at a time. Hopefully, your case will be diagnosed and respond well to treatment. I had a very severe life threatening case but have been in full remission for 8 years and off all controlling meds for 3. Each of us is different so all any of us can do is tell you our experiences and what we have heard from others.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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