Getting very frustrated..

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Christina1981
Regular Member


Date Joined Dec 2013
Total Posts : 41
   Posted 1/6/2014 10:34 AM (GMT -6)   
My aunt has lupus. And so does a cousin. I have had the lupus symptoms as long as I remember. Here are my symptoms; rash across face (covers bridge of nose and cheeks), reoccuring pleurisy, anemia, joint pain (i even have rashes on my joints and chapped skin!), random fevers, nerve pain, and so on. My doctor ran the ANA test on me and it came back negative for lupus. I'm so discouraged to what's going on with me. Has anyone had a negative test before? That rash on my face gets so hot and it's so noticable!

Thanks!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/6/2014 10:39 AM (GMT -6)   
Lupus is NOT diagnosed by a single blood test. You can have a negative ANA and still have lupus. Follow the links in my signature to understand about the 11 lupus symptoms - got 4 of 11? See a rheumotologist. While other Drs might think they can diagnose Lupus, rheumies are the only ones trained in diagnosis and treatment of auto-immune diseases.

Let us know how it goes!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Christina1981
Regular Member


Date Joined Dec 2013
Total Posts : 41
   Posted 1/7/2014 9:47 AM (GMT -6)   
Should I ask the neuro or GP to refer me to a rheumatologist? I have the type of insurance where I need referrals. I see her Thursday (I have pluerisy again! Third time in a matter of months). Thanks for the reply!

Christina1981
Regular Member


Date Joined Dec 2013
Total Posts : 41
   Posted 1/7/2014 9:49 AM (GMT -6)   
What about joints getting very dry and flaky! The joints of my wrists, fingers, and skin on my knuckles are so dry, they are even split! They hurt tremendously. This is a new symptom I have developed.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/7/2014 10:37 AM (GMT -6)   
I'd ask for a referral, if that's the only way to see a rheumy.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/7/2014 4:46 PM (GMT -6)   
Try rubbing baby oil on the rough spots. You can also try "Working Hands Cream".
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Christina1981
Regular Member


Date Joined Dec 2013
Total Posts : 41
   Posted 1/7/2014 9:03 PM (GMT -6)   
Thanks all and I am yeah over your screen name couch tater!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/7/2014 10:23 PM (GMT -6)   
My mother used to call me that cause I loved tv as a kid. I'm still a bit of a spud because my illnesses prevent me from getting out of the house most days.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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