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Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/7/2014 3:48 PM (GMT -6)   
It sure has been a roller coaster day. From headaches, diarrhea, to sweating profusely I can't seem to win. I also ended up leaving early from school, I couldn't even last 8 hours. I guess my question is this. Does depression seem to happen upon you quickly? I remember how I told myself to stay positive and don't let this get you down, but it's hard. I'm not getting any better and have really bad days, it's getting me depressed. Who should I talk to, my Rheumy or should I see a therapist?
Melodie -
Dx: Autoimmune Pending type
Meds: PredniSONE 20mg a day

Keep the faith!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 1/7/2014 4:21 PM (GMT -6)   
Talk to your rheumy first. Often these mood swings are associated with prednisone -- they do get somewhat better as you get used to it.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/7/2014 4:33 PM (GMT -6)   
Honestly Lynnwood, I just am getting depressed on having to deal with being sick everyday. It's starting to take a toll mentally.
Melodie -
Dx: Autoimmune Pending type
Meds: PredniSONE 20mg a day

Keep the faith!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 1/7/2014 4:44 PM (GMT -6)   
It takes some adjusting, and most of us have to do some grieving -- basically let go of how we "used to be" and go thru the 7 stages of grief to get back to a place where we're comfortable again.

1. SHOCK & DENIAL
2. PAIN & GUILT
3. ANGER & BARGAINING
4. "DEPRESSION", REFLECTION, LONELINESS
5. THE UPWARD TURN
6. RECONSTRUCTION & WORKING THROUGH
7. ACCEPTANCE & HOPE

Since you haven't been fully diagnosed or treated yet, it's quite normal to be feeling the way you do. Try to stay in the moment, don't imagine how bad it might be, or worry too much about how bad it feels now.

Keep pressing on toward a diagnosis and a more complete treatment plan. It can get better - have faith that it will. Do your homework - the basics - good food, good sleep, moderate exercise.

Cheers
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/7/2014 5:45 PM (GMT -6)   
Thank you, Lynnwood. I really thank you for responding. What you said makes a great deal of sense. I'll try and do just that.
Melodie -
Dx: Autoimmune Pending type
Meds: PredniSONE 20mg a day

Keep the faith!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/7/2014 6:04 PM (GMT -6)   
I see a therapist to help me with the process and coping skills. She told me about the steps of grief. She also told me that you can flip back and forth on the levels too.
It really helps me to talk to one.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/7/2014 6:28 PM (GMT -6)   
Yeah, I may want to see a therapist too just to learn to cope. Good idea. You know, I saw one so long ago when I was diagnosed with ADHD and haven't been back since. But, I think I should, definitely.
Melodie -
Dx: Autoimmune Pending type
Meds: PredniSONE 20mg a day

Keep the faith!

CarolinaGal
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 1/7/2014 7:59 PM (GMT -6)   
Hey Melodie-
I am new to the site so I don't know much about you, but just from what you have said on this post, I can say I have been where you are. I will figure out where I should do an introduction post and give more information separately. I can tell you that I had symptoms for 8 months before seeing a rheumy and starting prednisone. I was overjoyed with how much better I felt once I started that. Of course as you are probably learning, that high only lasts so long. about 4 months after my first rheumy visit I was an emotional mess. Between still not having a definite diagnosis, having ever-changing symptoms, starting and adjusting to plaquenil, regular stress of life, and being tired of being sick and tired, I was a mess.

I was prescribed Cymbalta and it has been a life saver. I read a lot of conflicting information about it, but decided to take it. I am not a medicine person, so it was not an easy decision. Before this illness I had never taken any medications aside from those for regular illnesses. I rarely took Tylenol or cold meds even. I have peripheral neuropathy and the Cymbalta has helped a lot with that, too. It is also used to treat depression and anxiety. I am a completely different person and now able to focus on feleling better and living a more normal life despite my illness.

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/7/2014 8:12 PM (GMT -6)   
Carolinagal, thank you so much! What you said was inspirational and very helpful. I am hoping that by my next Rheumy appointment, we'll have a better understanding and new meds. This site truly is sanity saver and has so many great people that help daily. So glad you are here and helping make that possible.
Melodie -
Dx: Autoimmune Pending type
Meds: PredniSONE 20mg a day

Keep the faith!

CarolinaGal
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 1/7/2014 8:41 PM (GMT -6)   
You're welcome. I also want to mention that I am not too far ahead of you on this journey. My symptoms started August 2012. I started prednisone last April, plaquenil in June and Cymbalta in November. So I am basically an autoimmune newbie but I have learned a lot and worked through many phases over the past year. Stay strong!
Amie

Diagnosis for now..... UCTD and Secondary Raynauds Syndrome

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/7/2014 9:30 PM (GMT -6)   
I'm fairly new on this wild ride myself. I was told June 2012 after feeling like crud for five months. I'm still learning about this stuff, but I'm dealing. The first year is the most bumpy so far for me. My life was turned upside down, but it's getting better everyday.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Vicejha
New Member


Date Joined Jan 2014
Total Posts : 2
   Posted 1/9/2014 1:15 PM (GMT -6)   
Melodie

Lynn's advice is perfect. You ll go thru stages but don't evah give in. Evah. It's the disease and change of life that does it. It's not you. If drugs help well fine. I've chosen to go without them ( well except the Lupi drugs). I used to be a marathoner so you can imagine the depression even for guys who are supposed to suck it up. I have cerebritis SLE or brain lupus and have trouble walking but I am grateful for what I do have. For you remember depression is normal but don't give in don't quit and do not give up hope. Evah.

GabbyChick
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/12/2014 9:20 PM (GMT -6)   
Melodie,

I am new here too.

We are going threw a lot. We know to expect normal reactions to this horrid situation. Some days will be better than other's. Just do the very best you each day. Be kind to yourself. You deserve it.

Think of someone you love dearly... what would you tell them if they were where you are now?

Sending Luv!

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/12/2014 9:49 PM (GMT -6)   
Depression is very common with chronic illness plus dealing with chronic pain will cause it too.

Many of us take anti depressants to help with our moods. I see a pain therapist on a weekly basis. She just spent the past three weeks calling me while I was in the hospital. I find having someone who isn't related or very close to me the best person to share how I'm reall feeling about things.

Maybe you would consider talking with your Dr about and antidepressant and possibly seeing a therapist. Please know we all understand and care for one another here, so please feel free to share.

Someone will always be around to offer a shoulder. Hang in there you'll start feeling better real soon I'm sure.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/13/2014 1:10 AM (GMT -6)   
I truly appreciate everyone's support and value everything, everyone responds with. I am definitely going to speak with my doctor about antidepressants. I think it would also help to talk to someone other than family. I'm just hoping that when we move in 4 months, I'll be able to find a doctor in Mississippi that will be able to treat me as well as my current Rheumatologist. But then there I go...dwelling on negative and thinking to far ahead. I need to just relax, calm myself and know everything will work our. Patience is something I need to practice. Thank you everyone!
Melodie -
Dx: Autoimmune Pending type
Meds: PredniSONE 20mg a day

Keep the faith!

Taina81
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 2/5/2014 4:02 PM (GMT -6)   
I my self was diagnosed about 3 months ago. Was suffering from muscle pain,fever and depression because dr didn't know what I had. Plus in 2012 they did blood work for lupus and came back negative. Went to see a different dr late 2013 and We'll 3 months later they did blood work again for lupus and came back positive. This wk has been hell because on Sunday I was having a bad eye pain so went to er and put an iv for pain. Next day I start having gas problems, pressure below my chest like I couldn't breathe and started having a panic attack because it was a bad feeling and got scared lol was feeling really tired that my eyes would actually close while at the store. At night had a hard time sleeping because was having a hard time breathing because of the excessive gas and this time my left eye started to hurt a little.Nxt day I end up waking up depressed and again with the gas problem. When night time came around it was the worst night ever! I couldn't sleep once AGAIN because of the breathing problem that I started developing another panic attack!i just wanted to get up and scre and cry and let everybody in te house how I was feeling! I tried so hard to ease my mind and relax and ended up falling asleep thank god. And again I woke up depressed today. Trying to see if I should see a therapist. My problem is I'm scared to take any anti depression pills because I've been on them few yrs ago and it was hell for me! I couldn't sleep I couldn't eat. Lost a lot of weight. Didn't want to go out.i was miserable. They probably change my mess like 3 to 4 times and still wasn't feeling like myself. I give props for those people that antidepressant has worked for them. After so many yrs being out of my funk here I am again! As of now husband and myself are the only ones that know that I have lupus. And we'll my husband can't really understand what I'm feeling because to him I look ok but he doesn't know how I'm feeling inside. And I do feel that I am alone in this right now. I stopped complaining to him about how I feel because he gets so stressed that we argue sometimes because he thinks I over exsagerate or it's all in my head :/ it's hard trying to keep my self together and having to take care 5 kids from age 1 to 14 yrs old.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/5/2014 5:03 PM (GMT -6)   
It's time to get the kids in on helping out. Explain to the older ones why they need to help and give chores. Kids want to help.

I take paxil for my depression.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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