Alternative Medicine

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ceashell707
New Member


Date Joined Jan 2014
Total Posts : 9
   Posted 1/9/2014 9:23 AM (GMT -6)   
Does anyone try it any of the alternative remedies? Herbs, oils? Special foods and diet?

I'm new to all of this, however, I have always went more holistically when sick and treating illnesses and injuries.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/9/2014 4:05 PM (GMT -6)   
As far as I know there is no alternative treatment.

The best way to describe lupus is your "germ fighters" go crazy and can't identify the enemy, so they go after healthy cells.
Picture a crazy general telling his minions to attack, but the minions are crazy too. They see a foot and yell "germs". Thus your foot starts swelling up and throbbing.

Your body just attacks itself.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

ceashell707
New Member


Date Joined Jan 2014
Total Posts : 9
   Posted 1/9/2014 4:16 PM (GMT -6)   
couchtater said...
As far as I know there is no alternative treatment.

The best way to describe lupus is your "germ fighters" go crazy and can't identify the enemy, so they go after healthy cells.
Picture a crazy general telling his minions to attack, but the minions are crazy too. They see a foot and yell "germs". Thus your foot starts swelling up and throbbing.

Your body just attacks itself.


That is a great way to describe it. I will have to borrow that from you. I have been researching Cats Claw, with is a plant form the Amazon rain forest which is a natural anti-inflammatory. I think I'm going to try that instead of the motrin/tylenol the doctor has told me to take.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/9/2014 7:11 PM (GMT -6)   
If your doctor told you to take tylenol instead of ibuprophen or NSAIDs then Cat's Claw is not safe either.
My kidney doctor told me NSAIDs are bad for lupus patient's kidneys.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/9/2014 8:23 PM (GMT -6)   
Had to step in here, be-careful with any supplement, do your homework on them and then talk it over with your doctor before trying any one supplement...once you've done that then start at a good vitamin store and that's not always GNC, GNC can be pricey...Good luck to you on this...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

ceashell707
New Member


Date Joined Jan 2014
Total Posts : 9
   Posted 1/11/2014 9:48 AM (GMT -6)   
Chartreux said...
Had to step in here, be-careful with any supplement, do your homework on them and then talk it over with your doctor before trying any one supplement...once you've done that then start at a good vitamin store and that's not always GNC, GNC can be pricey...Good luck to you on this...


Thank you for the reply. If I end up going this route, I will be ordering from Amazon. GNC is very pricey. I'm just trying to lower the cost of medications and try to not put synthetics in my body unless I have to. But I know that some herbs can be just as dangerous as traditional medications.

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 968
   Posted 1/20/2014 9:40 PM (GMT -6)   
Have you looked into bromelain? It's pineapple enzymes and a natural anti-inflammatory. Gin and
golden raisins work too....about 1/3 lb raisins to 1 pint of gin..soak for 1 week and take 9 a day.
Great for the joints....for me I take them at night and keep them in the fridge as it seems to work
better for me.
White Willow bark is "nature's" aspirin. Old Indian stuff.
I do herbal therapy for most of my ailments as I'm allergic to most meds. My arthritis stuff gave
me the lupus and an allergic reaction to the flu shot gave me fibro.
I have arthritis, fibro, lupus, spinal stenosis, scoliosis, blown discs, nerve damage, upside down
heart, diabetes, tremors, glitches in the brain...just to name a few. Life is soooo short you have
to live it to the fullest and NEVER back down.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 1/21/2014 7:12 AM (GMT -6)   
I've been experimenting with my diet, cutting out foods that are inflammatory and eating a lot of raw veggies and fruits which detox the liver. I've heard a happy liver makes for a happy body. If you try this just make sure you get lean proteins as well. There has to be a balance. At least diet is something I can do to try and help myself, it gives me a bit of control and helps my spirits.

I figure with lupus there is a higher risk of heart disease etc, so eating very healthy can only help :)

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/21/2014 10:46 AM (GMT -6)   
Omega 3 would be a good starting vitamin, ask your doctor about it. Lovaza is prescription omega 3, but insurance might not pay for it unless you have a heart condition. Omega-3's should be refrigerated. Co-Q10 is another good vitamin starting place...Both these are heart healthy vitamin's as well as helping overall...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Staying Positive
New Member


Date Joined Dec 2013
Total Posts : 2
   Posted 1/29/2014 8:22 PM (GMT -6)   
Acupunture and supplements have been very helpful for me.

Beating Lupus
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 2/7/2014 12:07 AM (GMT -6)   
I believe in both natural therapies and in modern medicine. I believe modern medicine is necessary to get flares and acute issues under control. But for true long term management, you need to make you body healthier from the cellular level. I have had lupus since 2007, started off on prednisone, plaquenil and Cellcept. And struggled. I switched my diet to Mediterranean, avoid red meat, drink green tea daily, take DHEA supplement (people with lupus are deficient in DHEA hormone, I take 25 mg daily, helps with energy), and take omega fatty acids, mostly 3 (fish oils, they are naturally anti-inflammatory). I also focused on sleep, exercise and stress control. All of these things were recommended by my rheumatologist. I started a supplement called Zyflamend, it is an herbal blend that helps with pain and inflammation. They all helped, but I still was not feeling as good as I wanted to.

Then I started a new supplement almost 2 years ago, called Vector 450 with Muno IGY. Since starting it, I have been able to wean off all my medications (off all meds in 6 months!). I have much better energy levels, and only occasional joint and muscle pain. I do yoga and exercise daily, which helps. But this supplement has been a Godsend! The best part is that it is not an herb, so there is no worry of interaction with your prescription medications. And it is not an immune booster, so it won't make the lupus flare. It helps with energy, has an anti-inflammatory effect, and helps fight infections and viruses! I got over the flu and strep throat with it last winter! And it has also helped with my allergies and asthma, I don't need my asthma inhalers anymore!
Oh, and I do accupunture sometimes too, that is good for symptom control, but does not get to the root of the problem.
Check it out!

All supplements I take:
Vitamin C 1-2 gms daily (lots of water!)
Vitamin E 400 iu daily
Vitamin A (helps with skin issues!)
Vitamin B-100 is a must!! (energy, brain function)
Calcium with D
Omega FA/Fish oil/Krill oil
Pro-biotics. You gut health is important! The steroids affects the normal bacteria in your gut, you need to replace it.
Zyflamend
Sam-E (helps with joint pain and mood)
Coenzyme CQ10 very helpful!
NAC-N-Acetyl-L-Cysteine
Vector 450 with Muno IgY
All of these supplements have been approved by my doctors, and most of them have been recommended by my rheumatologist!

Hope this helps

Natalie

Post Edited (Beating Lupus) : 2/6/2014 10:20:53 PM (GMT-7)


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2608
   Posted 2/7/2014 11:27 AM (GMT -6)   
Supplements can be beneficial, but I never take anything OTC unless I check with my rheumatologist first. You'll receive all kinds of advice from individuals, but unless they are MD's trained in rheumatology, you risk doing more damage than good.

I'm currently in remission which I attribute to:

(a) a healthy diet comprised of whole foods, free of processed foods and sugar, plenty of good proteins such as fish, and low in carbs; and WATER!

(b) a regular exercise program;

(c) the vitamins, minerals, and supplements my doctor prescribes;

(D) 8 hours of sleep at night, and plenty of rest when my body tells me I need it;

(E) regular check-ups with my internal medicine doctor and my rheumatologist (who share info, including lab results)

A positive attitude and a healthy lifestyle have been lifesavers for me. Prior to my diagnosis many years ago, and during the first few years that is was very sick with lupus, I had an unhealthy diet, didn't exercise, and hadn't learned to control all the stresses in my life.

Sorry that I got way off-topic here, but I believe strongly that lupus is too serious a disease to play around with and self-treat.

Post Edited (PattyLatty) : 2/7/2014 9:30:59 AM (GMT-7)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/7/2014 7:07 PM (GMT -6)   
Mehak, lupus happened because your antibodies (germ fighters) go crazy and start attacking your healthy tissue.
I don't believe there is a certain trigger, but for some reason it just happens.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Beating Lupus
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 2/7/2014 8:34 PM (GMT -6)   
Mehak,
Many things can cause your Lupus to flare. Lack of sleep, stress, illness or infection, toxins in the environment, such as air pollution, household cleaners (non-natural ones), toxins in food (food additives, pesticides, and preservatives added to meat, dairy and processed food). Red meat also can cause a flare, because it contains Archianic acid, which increases Prostaglandins. Which causes inflammation. Try to eat chicken and fish mainly in your diet. Eating food that is natural and not processed is important, organic If you can. If not, just eat natural. And use natural cleaners in your house. I use a 50/50 mix of vinegar and water. I buy a large container of white vinegar for a few dollars, and use an old spray bottle.
I know I have flared when I overdo it, and don't get enough rest, or if there is too much stress, and if I eat red meat. Yoga has helped me tremendously to manage my stress. Reading, listening to calming music helps too.
I hope this helps!!

As far as any supplements or alternative therapies I have recommended, I am a nurse and have researched everything I take, and all my supplements have been approved by my physician. I only recommend things I believe in and that have helped me :)

Natalie
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