YAY!! Going Home

New Topic Post Reply Printable Version
29 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/11/2014 3:03 PM (GMT -6)   
Hello to one and all of my wonderful HW family:

I can not begin to thank you all for your support, responses, prayers, and positive energy sent to me. I thank you SO much for them, you will never know how much they have meant to me.

In about 2 hours, I'm going to be allowed to go home yeah yeah yeah After spending 19 days here in the hospital I'm more than ready to be at home.

I'm well enough to be out, but I still need an additional five days of IV antibiotics. Thank goodness I have a mediport and can receive those medications at home.

I've been very ill and am very, very weak. I spent a week in the ICU. Almost ended up in surgery due to bleeding internally. The pneumonia was VERY difficult to treat. I am now on the road to recovery, and so happy about this.

Just wanted to let you know how much I appreciate and am thankful for all of you. I will post maybe tomorrow after I've settled in at home. Bill and I will both be trained on how to give the IV antibiotics as I need them 5 times daily. A nurse will visit once a day to check on me.

Please pray all goes well and that I have NO REASON to have to return to the hospital over the next five days. Will see the Infectious Disease Dr Tues morning. I'll keep you posted, and again thank you for your support.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4497
   Posted 1/11/2014 4:10 PM (GMT -6)   
Happy to read this Barbara. Glad you're finally going home. I hope you will continue to recover and feel better.

Hope you app goes well on Tues. Take care and get your rest. Keeping you in my prayers and thoughts!

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

TXplowgirl
Regular Member


Date Joined May 2010
Total Posts : 66
   Posted 1/11/2014 4:32 PM (GMT -6)   
Good to hear that you are finally feeling better and get to go home. Yaaaaaa!!!

Please take it easy and don't try to do too much at once, PLEASE! You don't need to go back in.

My prayers again that you keep feeling better.
Systemic Lupus, Connective Tissue Disease, Fibromyalgia, Chronic Fatigue Syndrome, Raynauds, Anxiety and Depression.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 1/11/2014 6:09 PM (GMT -6)   
Barbara This is wonderful news. I'm so happy that you are better and get to got to go home. Please be careful, and not overdo. I will be praying that you continue to get better, and won't need to go back. Take care my friend.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 1/11/2014 7:28 PM (GMT -6)   
Wonderful news! Please take it easy!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 1/11/2014 8:49 PM (GMT -6)   
Hi Barbara,

I am so happy to hear that you are going home. Please take it easy and give yourself the time to heal. I will keep you close to my heart and in my thoughts.

Love,
Laura

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/11/2014 9:49 PM (GMT -6)   
So very glad to hear this, yes, you get to go home! yeah!!!!

A few year's ago I had IV antibotics at home, get an old sock, but clean and you can use that to cover up the tubing...Glad you'll have a visiting nurse as that will help...
Many more prayers...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/11/2014 9:55 PM (GMT -6)   
Yee-haw! I'm so glad you're going home.
Rest and take care of yourself.
((((((( hugs)))))))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1352
   Posted 1/12/2014 12:06 AM (GMT -6)   
Hugs !!

Glad you are recovering !

My friends & family read my fb posting asking for prayers for Barbara & responded - from several states .. I've never asked before - but thought 'mores better'!

Bless you hon
Diane
Old enough to be a grandma !
Herniated cervical discs & other disc / spine issues, Arthritis,
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis
Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

Post Edited (DianeB) : 1/13/2014 6:29:17 AM (GMT-7)


Fusiongirl
Veteran Member


Date Joined Apr 2012
Total Posts : 608
   Posted 1/12/2014 10:07 AM (GMT -6)   
I'm so pleased that you are being allowed to go home. I was so worried for you. I pray this is the beginning of you starting to feel lots better....in every way.

Will be praying for your continued recovery.

Take care and rest plenty, it will take time for you to get some strength back.

Jane

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 1/12/2014 11:03 AM (GMT -6)   
So glad :)! YAYYY
Amy
Lupus Moderater

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 1/12/2014 6:20 PM (GMT -6)   
Barbara I'm so happy and thankful that you're going home!!! I've taken several IV meds, including antibiotics, at home. Hubby and I found it pretty easy, so Go Girl Go! Since you're so weak be sure to put chucks on your bed and I found Depends diapers a God send. Once again, just hearing you say you're being discharged makes me grin! Love Ya, Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart dysfunction, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

GabbyChick
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/12/2014 7:34 PM (GMT -6)   
Hi!

I am new here, thrilled to know that you had HW community being so very supportive. Wonderful!

You are still on the mend, but well on your way! Fabulous, feels so good.

Of course my prayers will include you!

(Luv Hug)

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/13/2014 12:33 AM (GMT -6)   
Thanks everyone for responding and celebrating with me that I'm home. My first day home went pretty well. Have to admit I'm having a lot of belly and rib pain. More than in the hospital but I'm up on my feet more here at home.

Bill, has been giving me all of my medications IV. He's helping me up out of the chair and out of bed. My belly is so sore, from tearing the muscle and bleeding internally. The surgeon said it would take 8-12 weeks to heal the hematoma in there as well as the muscle. Said I'd feel like I've been cut open for sure. The ibs hurt like heck too, but I knew they would as I had already fractured 8 of my ribs last year in 2013.

I'm pretty weak, and when the nurse arrived last night he weighed me and I have lost 15 pounds since 12/23/13. Mind you I don't mind losing the weight, but this wasn't the best way to go about it. I'm wiped out and sleep a lot. My cat is so happy to see me, as I'm so happy see him too. I opened my last two Chrismtas gifts and thoroughly enjoyed one today. Bill bought me one of those massagers with heat that you put onto your chair or ouch. I spent most of the day in the chair with it running.

I'm now finishing up my night meds and I'm heading to bed. Need to getup a 4:30 am to take of meds from the frig so I can hang them at 6:30 am.

I hope that you are all doing well, and having low pain levels. Thank you for your prayers and support I'll keep you updated as the week goes on.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/13/2014 4:30 AM (GMT -6)   
Those massaging cushions are the bomb, Barbara!
I love mine so much I came close several times buying a massaging chair.
Relax and take care.
(((((((Hugs)))))))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4497
   Posted 1/13/2014 7:17 AM (GMT -6)   
Hi Barbara,

I'm glad to hear your first day home went well and Bill is taking car of you.
Enjoy the massage cushions. Rest up and remember to take it easy.

I hope you'll continue to feel better and you will get some pain relief.

Take Care

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/13/2014 1:16 PM (GMT -6)   
Glad things are going good so far, keep taking it easy for a few more days, enjoy it. Many more prayers are with you and your family. So very glad your at home...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 1/13/2014 8:43 PM (GMT -6)   
Barbara Lee, Thank you so much for the update! I am so glad to hear that you are home and recovering. Please rest and take it VERY easy. Thoughts and prayers stay with you.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/16/2014 1:13 AM (GMT -6)   
Barb, its your pain buddy here, haven't forgotten you, my friend.

This is my 23,000th post at hw, and I dedicate it to you, and your health and for being a dear friend to me.

Lets catch up soon.

Gentle hugs, David
Age: 61, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/17/2014 12:39 AM (GMT -6)   
Hope your getting better from the pneumonia. Many more prayers!
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 1/17/2014 2:29 PM (GMT -6)   
Hey Barb,

Positive energy coming your way from sunny California (although we really need the rain!!). Thinking about you and hoping that each day helps you to get stronger.

Love,
Laura

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/19/2014 5:09 AM (GMT -6)   
Good Morning Everyone:

Thank you so much Laura, Chart, David, Fran, UA, and Joy for you kind words and support. I appreciate it that you are all still thinking of me and sending well wishes my way.

Sorry, I've not posted lately but I'm just so weak yet. I finished my IV antibiotics on Thursday night, so glad that's done now. The nurse was here on Friday to take my Huber needle out of my port and I was able to have the most amazing shower after that. I hadn't had a REAL shower since the 22nd of December.

Yep, they let me have three partial showers while in the hospital, but you all know how those go. Yesterday, I finally went out with Bill. I wanted to go with him to the store and pick up groceries. Well, we were gone exactly 2 1/2 hours and boy was I wiped out when we left the store.

Yesterday, was my first outing since I became sick on Dec 20th. Today I think I'll just rest and try to sleep some. I'm up at 5:00 am because my nose stated bleeding at 4:15am. Finally managed to stop the bleeding, but now I can't go back to sleep. My neck is hurting as is everything else, I'm now back down to 20mg of prednisone I'm not to happy on this dose. I was feeling so much better on the 50mgs LOL.

I'll see my PT on Monday morning, I'll also see my PCM on Thursday. Hoping my appointments go well, my poor stomach is in such bad shape that I'm sure it's going to require the Dr to approve it so that I can return to pulmonary rehab.

Well that's pretty much all that's happening here. David thank you for dedicating your 23,000 post to me. Yes, we need to catch up really soon. I know that you're having a lot more pain and I'm truly sorry about that. If there is anything I can do please just let me know.

Here's wising you all a good day today. May your day be good, happy, and I pray that your pain levels are low today too. Take care of yourselves and I'll be in touch, thank you for all your support.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 1/19/2014 9:24 AM (GMT -6)   
Whooooo hoooooo!!! Home is so much better than a hospital!

Rest rest rest! It takes baby steps ;) Your body and mind have been through a trauma, for real, and it's going to take time.

I hope today is better than yesterday and each day more and more :)

Fusiongirl
Veteran Member


Date Joined Apr 2012
Total Posts : 608
   Posted 1/19/2014 12:08 PM (GMT -6)   
Barbara, so glad you are home and improving. Great to see you getting out and about again. Hope you go from strength to strength! Thinking of you.

Jane

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/19/2014 2:11 PM (GMT -6)   
Glad you're getting better. Try not to overdo it and take care of yourself.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
New Topic Post Reply Printable Version
29 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, September 20, 2018 7:29 AM (GMT -6)
There are a total of 3,005,024 posts in 329,189 threads.
View Active Threads


Who's Online
This forum has 161760 registered members. Please welcome our newest member, Adrianna1023.
262 Guest(s), 6 Registered Member(s) are currently online.  Details
Tudpock18, 61Impala, Mamatomypeas, Buddy Blank, rpgdancer, limey