Sometimes we feel worse before we feel better. Even though your inflammation markers are not increasing, your pain levels certainly can increase. One way some Drs diagnosis Lupus from Fibro is this -- it is well known that Prednisone helps Lupus pains improve, while it doesn't have much effect on Fibro. Or it could be that your Lupus is acting up more than it was before your diagnosis.
Lupus is known as the disease of 10,000 faces, because it is so unpredictable from person to person -- exact same treatment, one may get better, one may get worse.
If you start with 10 mg pred, and are dropping 1 mg every 2-4 weeks, how low do you go before having more pain? Sometimes it just takes a while -- and if you are at say, 7 when you start feeling more pain, go back to 8 for a few more weeks then try again. Don't jump up to 10 unless 7,8,9 for 2-3 days each doesn't help. (Unless your RHEUMY says something else specific). You do have a rheumy that is treating you, right?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & LUPUS RESOURCES
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