Lupus and Lyme?

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New Member

Date Joined Jan 2014
Total Posts : 1
   Posted 1/14/2014 2:33 PM (GMT -6)   
I am new to this forum. I have just been diagnosed with Lupus. I am doing research and learning that my symptoms could also possibly be Chronic Lyme, and possibly I might have Chronic Lyme which has triggered the Lupus. Is this something others have dealt with? I have Kaiser insurance in California, and my doc is obviously only relying on the antibody test which is negative. So I am not getting much help with answers there.
I have a therapist/mentor, who I trust deeply, who has Lyme. She is encouraging me to research chronic lyme further, and do other tests. Tests she has talked to me about are the Igenex test (which is pricy) and the Challenge test (Byron White) + the CD57.
I would love to hear what folks have to say about this.
Thank you,

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 1/14/2014 7:18 PM (GMT -6)   
You can have lupus without a positive ANA. Are you seeing a rheumatologist?
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 1/14/2014 9:34 PM (GMT -6)   
I encourage you to visit our Lyme forum, since that seems to be what you are questioning. I don't think we have anyone on the Lupus forum who is knowledgeable about Lyme in more than a general way.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde
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