My experience with being sick

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Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/17/2014 12:45 PM (GMT -6)   
I'm a newly 20 year old I've always had a weak immune system id get sick once to twice a month lasting anywhere from a week to 3 weeks. I'd always be missing school and going to the doctor for antibiotics because I could never fight what I had on my own. I would get disgusting sore throats that had white gunk completely covering then it never was strep or mono. I was regularly poked for mono twice a month. It never came up as mono and antibiotics always helped me but also made it harder for me and made my immune system lower. I finally just got my tonsils out which really helped me to stop getting sick every month. I've always had extreme exhaustion and fatigue since I was younger I also had belle palsy and high levels of Lyme whatever that means. I had to take a lot of pills for that. I also had gotten pregnant with my beautiful daughter at eighteen and had her at nineteen. While I was pregnant I dele coped this itchy rash all over my stomach and arms and legs they told me to just put cream on it after months it went away when I had my daughter I developed a weird rash on my shin resembling ring worm but a lot darker in color and I'd pick at a lot of skin it left a mark it I've had that a couple times on my legs they all left little marks. Now I am currently breast feeding my daughter who is a year now. And I developed a weird rash recently that I had for a week on a half it's one singular mark that keeps growing in size is it ring worm? Or perhaps lupus I'm so scared going to doctor in a couple days.

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/17/2014 12:46 PM (GMT -6)   
Also I have a blood disorder thalassemia trait but I never looked into and I have anemia and I bruise easily, I have swelling in the joints in my fingers I always have pain in my shoulders wrist fingers I have a sensitivey to cold and my finger beds turn blue sometimes I also get a lot of headaches

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/17/2014 12:49 PM (GMT -6)   
When I was 11 years old I got a rash on my face that looked like clear bumps my mom took me in the doctor didn't know what to think told me it'll go away on it's on that's it was probably fungal. After that went away I got a dark red spired rash on my neck which ended up leaving a mark I never brought it up to my mom. After that I developed other weird rashes I don't remember ever getting bit by tics might have though. My father would go hunting And owned a farm are on fair field Illinois he would hunt feet and is go with him we'd get bit up by tics sometimes. I developed belle palsy but never noticed for a while i would drooling when brushing my teeth but brushed it off it wasn't until my mom and my sister kept making fun of me for doing a cricket Smile and yelling at me in an effort to get me to stop doing it I started crying locked myself on the bathroom and tried to smile to see why they kept making fun of me to my horror I could not move the left side of my face i could close my eye my mom took me to the doctor. I don't know for sure if I did have Lyme disease I just remember them checking for a stroke which I didn't hAve and checking my blood and later telling me I have high levels of Lyme whatever that means jus prescribing huge light green pills looked like horse pills and also little white pills and the fact that I had to drink about 20 something pills. A day.

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/17/2014 12:50 PM (GMT -6)   
I also wanted to put out there I get memory fog confusion I talk gibberish sometimes like I feel like I scrabble my words together and can't understand what I said it's been scaring me but I've been ignoring it I haven't seen a dermatologist but I am going to the doctor Friday.

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/17/2014 12:51 PM (GMT -6)   
I couldn't go to the doctor today under some unfortunate family problems so I rescheduled for Thursday the 26 today I got a rash that felt hot and burned it's a dark pink on my hand it hurt but now not so much I got a slight rash on my face to so hopefully by Thursday I'll have a clue as to what's going on

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/17/2014 12:53 PM (GMT -6)   
Ok people! I'm sorry I haven't been on lots of drama and issues! I won't bore you with that but I'll get down to the needy greedy so I went to the doctor for my appointment but he couldn't figure. Out what my rash was do he prescribed me steroid cream take it for ten days then come back I tried to tell him how I felt like I had arthitis in my fingers and how I was diagnosed as a kid with it and how I felt like I had it in my shoulder blades he said oh well deal that next time you come really rushing me put I don't know why I told him how I felt very fatigued and felt like I was forgetting to much. He said we'll deal with that next time so I dropped it went on my merry way well yesterday night I got extremely sick I kept puking and having the runs and I between feeding a teething toddler breast milk. So I felt like my stomach hurt so much and u felt severally dehydrated but I didn't want to seem like I was being to delicate my niece had the 24 he stomach bug so did a lot of my family so I chalked it up to that but in the morning I could take it anymore I had to go to the er ASAP so I made poor dh take me and miss work when I got to the hospital they checked my urine and ran blood tests just to make sure it was a stomach flu nothing serious so after that they saw my urine and said I was extremely dehydrated so they gave me three bags of water then they saw on my third bag my heart rate wasn't going down so they checked if I had blood clots I didn't but they also made me have a fourth iv bag of water they also gave me Pain medicine and not to throw up medicine I had no fever which they thought was weird but couldn't find out what was wrong with me so they did a thyroid test n the results go to my doctor and I have to go tomorrow if my hearts still racing there going to admit me to the hospital. That's where I am right now. There was also blood in my urine

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/17/2014 12:54 PM (GMT -6)   
Hey guys! Just wanted to give another update. I went to the doctor today but I arrived thirty minutes late and the lady at the front was really annoyed. I tried to explain to her that I had even very sick and threw up a couple times on my way over but she rescheduled the appointment for later even though the office was completely empty I kid you nt there was no one waiting there so I left then came back an hour later for the appointment my doctor basically read over my description from the er visit said of it was correct I said yes asked about the rash I had that he told me to take steriod cream for and that to come back in 14 days

I asked him what about my blood count he told me I had a slight white blood count if 1400 I told him ok is that ok though and he said that he didn't want to retest because its prolly just because I'm sick and said that **** test for the other things we talked about at the next visit which made me confused because that's what he said the last visit I'm starting to think he just like stretching out appointments for more money. He rushed me out so fast that I didn't have a chance to ask bout the blood in my Urine or tell him about my swollen legs feet and hands that if assume is prolly just from the 4bags of fluid

I was pretty mad that he was rushing me put he kept asking me are you ok you still look pale I was like I'm ok because what else would I say if everything I say he says he'll look at at the next appointment! The last thing he told me was to rest and not go anywhere and drink plenty of water things I already knew at the er sigh
The test it says on my er visit sheet are tsh. Ddimer, CBCA, cpnl which all came back normal they said something about my phalets but I forgot what they said

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/19/2014 4:52 AM (GMT -6)   
Hi Diana:

Sounds like you've been through a lot. I have a couple of questions for you, have you been DX'd with Lupus? What kind of Dr are you seeing, is it a Rheumy? If you're not seeing a Rheumy I would strongly recommend that you see one. They are the best at putting together this kind or stuff.

It does sound like you had a stomach bug, are you still vomiting and having diarrhea? It's interesting that you mentioned that you've had Bells Palsy, I've had it 3 times in my life. I've had it twice on my right side of my face and once on my left, I was only 7 years old when I had my first case. I then proceeded to have it reoccur every 7 years, the Dr's had no idea as to why I got it.

I too had serious issues with my tonsils as a kid and struggled with them until I was 31. I had them removed at that time and all my infection issues went away for at least my throat. I've been dealing with lupus for 26 years now. It took my Doctors 13 years before they started to acknowledge that I even had lupus. They began to treat my lupus in June of 2001. I have to admit I truly believe that waiting so long to start treatment on me is what caused me to be so ill now.

I too have had rashes that look like ring worm, but mine would be very purple looking in the center. I also get rashes that look like chicken pox and that's what my dermatologist too a biopsy and it came back at lupus. I've never had anything come back positive about Lyme disease in any of my tests.

I'm not a Doctor and I can only offer up my personal opinion, but I'm wondering if maybe you have to much stress going on in your life and it's causing you to flare up more. Another thing I might question is I know you mentioned that you're still breast feeding your daughter. It's possible that your body is run down a lot and it's having a hard time keeping up, per say, with feeding her. I would suggest that you get into see a Rheumy ASAP, if you've not already seen one. If the Dr you've been seeing is one, I would RUN not walk to the next one and get a Second Opinion ASAP.

Try to get as much rest as you can, drink plenty of fluids, and sleep when your body tells you should. I know that this last one is hard to do, but try. Try not to worry to much about the blood in your urine. Lots of people get that and for no reason really. Try to limit the amount of stress that you're under and just rest as much as you can.

If you have any questions, please feel free to ask, as there are many folks here that have loads of knowledge. Hang in there and you'll start feeling better really soon, once you get the right doctor on board.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/19/2014 11:31 PM (GMT -6)   
Thank you so much Barbara! Your amazing. That is so interesting I always thought all the antibiotics they gave me made me have such a weak immune system. The ring worm like rash if like to put up here to help anyone out who had a rash like this do you know how to post picture I have pictures of those. I also wanted to say I've been really exhausted lately to the point I've been taking the naps with my daughter. I also wanted to point out I don't know if this is just me but has anyone experienced having white particles in their pee sometimes to the point it's really cloudy white? And you really described my life with the tonsil infections and I've had that chicken pox looking rash about three times in my life they werent itchy but they covered my entire body but my mom never took me to the doctor for it. I also had really bad pink eyes that would swell up my eyes and crust them shut when I was young I had it about 7. Different times in one year it was strange. Also does anyone get blue toes and finger? Sometimes it turn purple and if I cross cross my legs I get like a feel like bloods rushing and sometimes my fingers go numb or my feet? I had my tonsils removed at eighteen because I was sick of being prescribed antibiotics because I feel like it completely ruined my immune system. I feel for you so much Barbara! I can't imagine all the things you been through! Thank you so much for replying! <3 sending love your way!

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/19/2014 11:37 PM (GMT -6)   
Also one more thing does anyone can't sleep at night I've been having bad shoulder pain and pain in my hands to the point I can't sleep. And I also wanted to say I have not been diagnosed with lupus my doctors been not taking me very seriously I'm looking into finding a good doctor but don't know where would be a good start. I also wanted to say I've been feeling number the weather for two weeks I been having a sore throat and just feeling overly tired but not enough to say I'm sick enough to see a doctor has anyone has a sore throat but no other symptoms I'd say my nose feels a little stuffy nothing serious though.

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/19/2014 11:52 PM (GMT -6)   
I also wanted to say I'm looking into another doctor what is a rhuemy? I wish my doctor would've let me get my rash tested to see what it was but he wasn't very concerned about it. He seemed annoyed I took so many pictures of it lol. I also wanted to say has anyone ever had blood in there stool? I feel like ever since I had blood in my stool and my doctor refered me to a gi because I wasn't feel good and having a lot of mucus and blood in my stool and runny stool which they checked half my tract and there wasn't anything but internal hemorrhoids that maybe he feels like I cry wolf? I don't know. I am going to go see one once I find one this weekend and if I can figure out how to put pictures up I'm gonna put how my rash progressed over a few weeks and it left a mark which sometimes shows through more I also wanted to say I feel like I'm crazy does anyone have a light pink rash on their face that worsens with fatigue? I feel like when I'm really tired this light pink rash on my face becomes a brighter deeper pink? My dh have seen it a couple times so I know I'm not crazy lol.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/20/2014 3:00 AM (GMT -6)   
A rheumy is short for rheumatologist. They specialize in lupus and other autoimmune diseases.
I don't know how to publish photos here.

Make sure to look at the top thread and read the facts about lupus.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Dianax3
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/26/2014 11:28 PM (GMT -6)   
I feel really sick I got this red rash on my thigh it's really dark red it's been growing the past two days wondering if anyone has experienced this

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/27/2014 12:06 PM (GMT -6)   
Sounds like peticha (sp?). tiny popped vessels bleeding under the skin.

Mine got bad from UV exposure.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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