New to forum-daughter of lupus patient

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Smooty79
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/18/2014 4:53 PM (GMT -6)   
My mother was diagnosed with lupus in 1987 and this is the first time she has felt defeated. I'm not sure how to keep her or my own spirits up. She had swollen feet and legs, so she was sent to have a kidney biopsy. We don't have the results, but they won't release her because her creatin and BUN levels keep rising. She has asked the doctor if she is going to die twice. She has always been strong and a fighter, any advice or suggestions for my family? Or experiences with kidney problems?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/18/2014 5:07 PM (GMT -6)   
Sounds like she's worried. I understand that concern, but it's not the end of the world.
My brother has ESRF and has been on dialysis for 10 years. My mother has MSD and her kidney function has been 26% for many years.
Lupus makes my legs and feet swell too. (I take two Lasix a day)

Try not to fret too much that just brings on stress. Stress makes us feel worst.

One of our moderators had Lupus Nephritis and she can discuss question better than me. Hopefully she can come on here soon.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Smooty79
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/19/2014 8:35 AM (GMT -6)   
Thanks, that eases my worries a little. I will see her numbers when I get to the hospital today. I'm not sure how they expect her to get stronger when they keep drawing so much blood. The doctors were thinking of a transfusion. Right now a team of doctors are treating her in the hospital.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 1/19/2014 9:14 AM (GMT -6)   
Hi Smooty, I hope your Mom is doing better today and you too.

I can't advise you about kidney problems but I can suggest something your family could do, laugh together. It's very healing and can lighten the mood and alleviate stress for all of you. Sometimes when dealing with scary health issues the last thing any of us feel like doing is smiling but I can honestly say that humour is a healer!

My husband is such a gift to me in that he will do something goofy and make me giggle when I'm feeling at my worst. Maybe you can talk about some funny things you did as a kid, that's usually a good starting point.

She is lucky to have such a caring daughter and I think you have inherited her strength. It's ok to cry together too. This is hard on all of you, hang in there.
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