Swollen eyes and swollen fingers?

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Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/20/2014 7:26 PM (GMT -6)   
Just another symptom I don't understand. Is this normal? I called my Rheumatologist and he was talking about upping my Prednisone dose. I'm already on 20mg a day and don't want to go higher. I just don't know why all the sudden new things are popping up, I have so many questions and don't know where to turn. I mean, it's great posting a questions here and there but I need more. Help, newly diagnosed and freaking out.....again!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/20/2014 7:38 PM (GMT -6)   
How bad is the swelling?
I have puffy looking eyes and my hands will swell and look like fat little sausages some days. I believe it's from inflamation.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/20/2014 8:49 PM (GMT -6)   
Hey Melody,

I wanted to respond to your post to maybe help with your emotions of freaking out and being overwhelmed.

Yes, having swollen fingers is very normal. The eyes it depends on the patient. You sound as if you've been in really bad flare and so far 20mgs of pred hasn't kicked it totally.

That happens sometimes and we can need higher doses of pred. Sometimes it requires not only pred but plaquenil and an immuno suppressant drug to get our disease under control.

Now that being said I'm not a Dr, but I've had lupus a long time now. I going to guess that your Rhuemy is thinking that your inflammation markers haven't come down yet, hence the need for more pred.

I know how much of a bummer it is to take even higher doses of the stuff. I once was on 100mgs for two weeks before they started a taper. It's quite possible some extra pred will make the difference.

Now IF your inflammation markers have started going down, it's possible that the pred is causing the swelling. Pred can cause water retention. I take lasix daily to help counter the fluid retention I have.

My eyes are swollen too, mine are caused from the MOON FACE that I now have from taking pred everyday for 13 years at an average dose of 25mgs daily.

Are you keeping a journal listing ANY and ALL symptoms you are having. If not you should start one so that when you see your Rheumy you can show it to him.

As for getting more info on lupus there are several good books for sale about it. Most of us own Dr. Wallace's books on lupus. You can also contact The Lupus Foundation in Bethesda MD. They will send out info to you and they can also tell you if there is a lupus support group near you.

Finally, I'd be more than happy to answer any questions you have. My email is listed in my profile and I'll respond right away to your email. If you decide to email and want to exchange phone numbers, I'd be more than happy to talk with you at anytime.

Hang in there, it just takes time to get flares settled down, especially ones that have been around a long time. You'll be in my prayers and keep us updated on how you are.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 1/20/2014 9:35 PM (GMT -6)   
Barbara, thank you, thank you, thank you! It is scary going at this alone. I am so appreciative of all the info you gave me and would love to reach out to you to talk to you. I also need to ask my Rheumatologist about the water rention business. That's all I drink. No soda, no juice, a rare coffee and that's it!

Well, look out for an email from me. And really, thank you so much again for taking the time.
Melodie -
Dx: Autoimmune Pending type
Meds: PredniSONE 20mg a day

Keep the faith!
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