Help!!! 8yr old and pain

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MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 1/27/2014 5:36 AM (GMT -6)   
Guys this is not a lupus question but I wanted your opinion since you have been so helpful. For the last year almost my 8 yr old has been have migraines off and on with sometimes 3 months in between episodes and he has been have really bad leg pains that are localized to only the right leg between the knee and foot. His PCP kept saying growing pains but it is getting worse and he is not getting any taller or bigger. Last night I had to take him to the ER because he was screaming and crying that it felt like someone was crushing his bone. The ER doc took blood and did an xray and everything came back normal. His leg was slightly swollen. They released us as soon as he was able to walk and put pressure on leg again and told me to get an appointment with the pain medicine clinic. But they do not think it is growing pain. They ruled out infection, bone cancer, etc.

I am so worried as there are a number of auto-immune issues that run in my family and on his dad side a blood disease that affect bones. He goes to see his PCP on Thursday and I am going to ask for more test. There is something going on.

Thanks for reading my vent/worries.

Connie
Between diagnoses (auto-immune or fibro)
Planqueil 200mg twice a day, Lisiniprol

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 1/27/2014 8:12 AM (GMT -6)   
I had those mysterious "growing pains" in my right leg as a child, 45 years ago. Since it's been so long, I really hope that we've developed enough medical expertise to find a better answer. I was so frustrated by that non-answer, as were my parents. I wasn't ever offered any kind of pain med, so just that is an improvement!

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

TXplowgirl
Regular Member


Date Joined May 2010
Total Posts : 66
   Posted 1/27/2014 9:46 AM (GMT -6)   
Sorry to hear that he's hurting so much.

I had growing pains from the age of 7 and my mom has told stories of me waking up in the middle of the night screaming and crying I hurt so bad. I was always told to "get over it" and whatnot. I can remember how I felt when no one listened to me and told it was just growing pains you'll grow out of it, Grrrr.

I was wondering if you could get him in to see a pediatric Rheumatologist?
Systemic Lupus, Connective Tissue Disease, Fibromyalgia, Chronic Fatigue Syndrome, Raynauds, Anxiety and Depression.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/27/2014 12:03 PM (GMT -6)   
I agree with txplowgirl, he needs to see a pediatric rheumy.

I had a lot of mystery pains as a child, too.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 1/27/2014 5:54 PM (GMT -6)   
Thanks guys,

I will ask his PCP to send us to pediatric Rheumy. He is scheduled to go to Children's Hospital Pain Medicine Clinic on Friday.

Thanks again.
Between diagnoses (auto-immune or fibro)
Planqueil 200mg twice a day, Lisiniprol

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 1/29/2014 7:37 AM (GMT -6)   
Aww your poor little fella :( and you

My stepdaughter has mystery pains in her knees that she has had since she was little, she's 17 now. We always have ice packs at the ready in the freezer for her and sometimes she will be up in the middle of the night with tears running down her cheeks. It's so hard to see them hurt and feel so powerless. There has never been an explanation for them. I hope you get some answers.

This brings to mind a boo boo bear for me. I've seen them out there. They are bears stuffed with grain that can be heated or chilled. I wonder if something like that would be a comfort to your little guy.
Lupus, livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 1/30/2014 6:02 PM (GMT -6)   
Thank you all for your responses. We went to see PCD and we agreed there needed to be more testing and she is running the test for ANA and all the auto-immune stuff. She said that if anything comes back abnormal we are going to a pediatric rheumy. I was so happy to hear her say this. We were both on the same page. He is going to the pain medicine clinic tomorrow at Children's hospital so we will see from there.

What gets me is that he will be in so much pain with his leg and migraines one day and the next day he is up running around and being a kids.

Connie
Between diagnoses (auto-immune or fibro)
Planqueil 200mg twice a day, Lisiniprol

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/30/2014 7:36 PM (GMT -6)   
Kids are tough that way.
I've seen kids burning up with fever and be playing away.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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